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Has anyone had surgery?

Mon, 12/09/2019 - 08:33
I have Temporal Lobe Epilepsy due to a tumor in my right temporal lobe... My surgeon is talking surgery. Has anyone else had this surgery before? Or any type of resection to correct epilepsy? I need testimonials. Why did you get the surgery? How effective was it for you? How do you feel now? If you haven’t had surgery, and still are living with this disorder... how do you feel? Because I feel alone. I want to talk about it 24/7 but I can tell everyone around me is tired of hearing about it... so talk to me. I need a conversation with people who get it

Comments

Hi Anonymous,I would get a

Submitted by LAB_5d7542451f432 on Thu, 2020-01-30 - 12:52
Hi Anonymous,I would get a second opinion. For the simple fact, that some of these hospitals really "sell" you and promise alot!!!! I've had the surgery and my seizures became worse and more frequent.  As far as the doctors I had, at MUSC, Medical University of SC., could have cared less afterwards.  I lost a lot professionally and personally.  I felt as though the doctors were just looking for patients  to "study," for students, to some degree. You may have an excellent neurologist, and I'm sure you do........Do all the research you can on everything and everyone that will be involved  before and after surgery, including doctors, hospitals, and medications. I'll be glad to tell you more.  Good luck!     

Hi,I just had left temporal

Submitted by Tejina on Sat, 2020-02-01 - 12:55
Hi,I just had left temporal lobectomy on dec 2. I've had seizures since 2008 and they've all been tonic clonic. Oh right, I live in Canada so my surgery was free anyway it went amazingly well. I had memory problems afterwards (obviously lol) that were pretty bad but have slowly gotten better. The part of my brain that had gotten scarring from all of my seizures was basically removed and I haven't had any.major issues aside from my right hand deciding to do it's own thing and throw whatever I'm holding lol.Hopefully that helps!

The isolation you’re going

Submitted by Lurch69 on Thu, 2020-02-20 - 19:36
The isolation you’re going through is no different than me. Through high school I had few friends. The lack of involvement (school activities) and inability to drive, made school difficult. There was no true teenage life to enjoy, unless it was with family (not peers,)My eventual surgery was focused in the left temporal lobe, where the abnormal brain activity was monitored and activity spiked when a seizure hit.The seizures started around 2nd grade, as petit mal, and stretched over 40 years, progressing into partial complex in high school. In 2013 the VNS (nerve stimulator) was attempted. Like the doc stated, though, it didn’t stop them. In 2017, after numerous falls, head concussions and other injuries, the green light was given for surgery. My fear was that the continuous falls would bring a potentially detrimental head injury.The physician started the necessary tests, including an MRI, Neuro-psych test and a video EEG. From these, the physicians will determine whether you are a candidate.I suggest, if you’re seriously considering the surgery, start writing down questions that you (and family & friends) want answers to. This is a serious step, and you need all questions answered before proceeding. As for the aftermath, I’ve been free of seizures for two years. Co-workers have commented on me being more alert, the frequent falls have stopped and other improvements have come.Should you need other questions answered, post them on this site or communicate with me via Facebook.Take care,

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