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Can surgery cure epilepsy?
Thu, 11/02/2017 - 16:01Topic: Surgery and Devices
My son, Billy is scheduled for surgery and I am concerned that SUDEP will occur before that surgery happens. I am constantly checking in while he sleeps. I am afraid of disturbing him or upsetting him so I make up a reason I am looking in on him so he will not be alarmed by my obnoxious behavior. Billy will be 28 this December. He has had seizures since 8. Billy would have had the surgery but his doctor is out of network and the insurance will not cover it. After January the new insurance will have them in network but our coinsurance will be 10% of surgery and all doctors! That could be over $50K. I started a Go Fund Me campaign and it has raised 10% of the cost so far. ACA is reviewing his earnings history currently to see if he can use MediCal as he has missed lots of work this year from his breakthrough seizures while taken his meds. The neurologist says he is at the limits for Lamactal and Keppra and surgery is a good option but it is expensive even with insurance.
To read his story: https://funds.gofundme.com/dashboard/fixbillysbrain
I've always looked at
Submitted by RacerX35 on Fri, 2018-04-13 - 15:57
I've always looked at epilepsy as "a shot in the dark" for medications and surgery. I've gomne through a few meds and have been maxed out on all of them. Keppra, I was maxed out at 3,000mg. a day, Lamictal 800mg. a day and Vimpat at 400mg. a day. Now I've been changed from the Keppra to a new one - Briviact at 200mg. a day and I found out that I am already maxed out for this new medication. I had surgery about 10 years ago and was told that there is no garantee that I would be seizure free. Now I will be going back in for depth electrode surgery first, then another resection after that. Maybe this shot will work better that last time. At least I can drive now though.Later,Racer