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Auras after a right temporal lobectomy after 6 weeks???

Mon, 03/20/2017 - 20:19
Hi everyone. I'm looking for advice and stories of people who have had a temporal lobectomy. I'm still concerned because after 6 weeks from my surgery I'm still getting auras between 5 - 10 times a day. Some are a little less intense than the ones I had previously and others are about the same. A bit about me: - I have mesial temporal schlorosis on the right side - I have been diagnosed with refractory epilepsy and have tried many meds but none of them seem to work!! Hence the surgery - My seizures before the surgery weren't severe, they were mainly simple partials or complex partials - now called focal seizures I guess. Either way, they weren't grand mals and if you weren't looking at me at the time I was having one, you wouldn't know. - Most times when I got an aura, I wouldn't have a seizure. It would probably be every 10th time I had an aura it would turn into a seizure. - I am currently on Keppra (1500mg bd), Lamictal (200mg bd), Vimpat (200mg bd) and Fyompa (2mg @ night). I would like to know: if anyone who has had a temporal lobectomy still got auras after and then become seizure and aura free? My neurosurgeon and neurologist say this is totally normal and it takes a while for the brain to settle down after surgery. It is early days yet I guess. Then again, I have heard stories of people who never get auras again after the surgery. Everything else they said has come true. They said: 1. There will be partial periferal vision loss but that will be temporary (this cleared up after 2 weeks) 2. There will be headaches afterwards and I will be on prescription painkillers for a couple of weeks (they went after 4 weeks) 3. It's possible I'll have auras and seizures afterwards but that is totally normal and should disappear eventually - between 3 - 12 months is apprently normal (so far no seizures - touch wood!!! but I am still getting auras quite often). So I'm basically just waiting on the third item to come true now. Overall, they said I am doing quite well speech and language wise and no other symptoms seem to be present so I am very lucky. They did a very careful mapping of my brain beforehand and said I was dominantly left brained so they did expect me to do quite well. My age too is a factor (I'm 27). They gave me a 90 - 95% success rate of no more seizures!! Although I'm not sure that that included auras - I'm hoping it did!! I just would like to hear from other peoples experiences with a temporal lobectomy. Whether you had: - auras afterwards and if so how long afterwards - no auras afterwards - seizures afterwards and if so how long afterwards - no seizures afterwards Looking forward to hear from you all xo

Comments

I'm 27 as well and underwent

Submitted by Life2 on Fri, 2017-03-24 - 05:58
I'm 27 as well and underwent right temporal lobectomy (amygdalohippocampectomy) over 2 years back. Reason was the same- mesial temporal sclerosis, but the cause was unknown. I suffered from complex partials (you're right, the new classification from ILAE now names it as focal seizures http://www.ilae.org/visitors/centre/documents/ClassificationSeizureILAE-2016.pdf) for 13 years prior to the surgery. Though I had pain in the skull and jaw that took almost 3 months to stop completely, I've never had an aura or a seizure since. I've been on 3 AED's since the last 7-8 years, and now in the process of reducing them. The differences I can feel after the surgery is sensitivity to sound, a slight lack of emotions (anger, fright etc), periods of depression (due to personal/familial factors) and a bad short term memory.

I had it done in 2013 and

Submitted by ddca1990 on Sat, 2017-03-25 - 20:42
I had it done in 2013 and know how hard it is after! We all aren't the same but we can understand and be there for each other. I look back and see how unhappy I was and worry for others but I do know that it has been hard to through  but I have and would love to help you anytime you wish. tjrthe3rd@hotmail.com and we cam phone talk if you wish!

I had it done in 2013 and

Submitted by ddca1990 on Sat, 2017-03-25 - 20:56
I had it done in 2013 and know how hard it is after! We all aren't the same but we can understand and be there for each other. I look back and see how unhappy I was and worry for others but I do know that it has been hard to through  but I have and would love to help you anytime you wish. tjrthe3rd@hotmail.com and we cam phone talk if you wish!

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