Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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I'm not on drugs I'm having seizures!

03/2018 | 0 Comments

I am a 30 year old man from Pennsylvania. I started having seizures around the age of 14, I came home tired one day and when my family couldn't wake...
blood panel titers

03/2018 | 2 Comments

Hi there...new here...my wife who has had a series of troubling symptoms over the years just got a blood panel result with raised titers...supposed to...
We didn't know

03/2018 | 9 Comments

My four year old was diaganosed Friday with seizures after she stopped breathing on me and I did CPR on her on the side of the hughway. Followed by...
a little about me

03/2018 | 5 Comments

Hello, I'm a 36 year old Native American female. I've had a seizure disorder since I was about 7 years old. I really don't know what started it but it...
Absence Seizures Feelings

03/2018 | 1 Comments

Hi all, I was diagnosed with absence seizures about 7 years ago and have been on medication ever since. I have always been able to "feel" my absence...
Looking for Advice and Information

03/2018 | 7 Comments

Hi, i am a 53 year old professional Fire & Rescue Officer, always been a active fit person and up until May 2016 never been ill or injured other than...
Bad luck and feeling hopeless

03/2018 | 1 Comments

I've had a sporadic history of seizures since I was in my late 20's. Never had them until then. They come one or two at a time and then I may go...
aquired epilepsy

02/2018 | 1 Comments

It has been a year now since i hit my head in an accident. After 3 months from my head injury instarted having partial seizures. My memory has...
Grand mal seizures - how to explain

02/2018 | 2 Comments

Hello all, here is my story. I was diagnosed with grand mal and petit mal seizures. I have no issue with that. The problem is that I don't feel them...
Me

02/2018 | 0 Comments

I’ve been diagnosed with epilepsy and non epilepsy attacks would a service dog help with both attacks or just with appilepsy
Abnormal EEG with focal component

02/2018 | 2 Comments

My son had an accident when he was 12. They did an EEG and it was abnormal with consistency of generalized epilepsy. My son did a 48 he EEG and had...
Reaching out for some help and advice

02/2018 | 4 Comments

Hi all, I'm new here and this is my story. Please do come back to me with your thoughts and suggestions here, i'm going to spill it all out with...
You can do anything

02/2018 | 5 Comments

I am a 50 year old CPA with 2 kids who has had epilepsy since age 7.
My seizure story

02/2018 | 2 Comments

Hello. This is the first time I'm sharing my tale with someone who isn't my doctor or family. They just don't understand. I had my first seizure at 17...
My epilepsy attacks

02/2018 | 0 Comments

Hello everyone, I want to share my experience with everyone of you, and ask for advises and your help. My first attack happened around 6 years ago. I...
My seizure story

02/2018 | 0 Comments

I just started this and I wanted to say that I have had seizure ever since I was 5 and it is making me just a lot upset so I decided to talk about it.
My seizure story

02/2018 | 1 Comments

I just started this and I wanted to say that I have had seizure ever since I was 5 and it is making me just a lot upset so I decided to talk about it.
Did I just have a seizure?

02/2018 | 5 Comments

About me: 26 year old male with no prior history of seizures. I went to lie down shortly after 7:00 PM because I was feeling strange. The best way...

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