Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Topic: Share Your Story

We invite you to share your personal #DareTo Go the Distance story. Use this forum to talk about how you are managing your seizures, finding your best possible health care, and improving your quality of life.

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Non-epileptic seizures

12/2018 | 2 Comments

Has anyone had non-epileptic seizures? If so what were the signs? I couldn't find any information on them.
Not sure what's going on

12/2018 | 1 Comments

Hi. my name is Jason Womble, 45 living in Wisconsin. I apologize upfront for all the information, but I figured an idea of where things started to now...
Possible Seizure

12/2018 | 2 Comments

Does this sound like I have a seizure? I stopped with my hand a door frame. Unresponsive to simple questions. Hand slightly. Staring off. Tight grip...
I wrote my first book

12/2018 | 1 Comments

I wrote my first book and it is titled “Weird Girl With a Tumor” - available on Amazon. It entails struggles and challenges I went through while...
Sad story from 1990 to present

12/2018 | 0 Comments

Sad to say this but is true that I was born with a seizure disorder because the doctor or CT scan found a scar inside my skull that is not able to be...
My first seizure

12/2018 | 1 Comments

My first seizure happen when I was eight years old. My mom told had grand mal in her bed but didn't waking up a little until was in ambulance. I was...
Epileptic and trying to go to school

12/2018 | 0 Comments

https://www.gofundme.com/epileptic-needs-help-with-tuition&rcid=r01-15438290574-a2b65c8939fe4ace&pc=ot_co_campmgmt_w Hello. I am trying to figure out...
Gas Smell - Not there

12/2018 | 1 Comments

I’ve been on Dilantin since I was a teenager. I am now 48 & seizure free since on the meds. The past few months I smell this gas toxic smell. However...
Mom of epileptic

11/2018 | 1 Comments

Hello, I am the mother of an 18 year old boy who had his first general/primary seizure May /2018 lasting over 8 minutes. He has been healthy other...
hello

11/2018 | 0 Comments

Hello! I am new here. I have epilepsy since i was 12 and now I am 33. I have used many drugs but the main drug that i take is depakine chrono. When i...
My story

11/2018 | 1 Comments

Hi. I'm new to this. I had my first seizure when I was 44. Seemed a little late in life to have one. I don't remember any of it. All i remember was...
My Story

11/2018 | 2 Comments

I had my first seizure in Kindergarten when I was 6 years old and I was diagnosed with epilepsy a little later that year; at the time I was having...
Did i have a seizure?

11/2018 | 0 Comments

Hi there, I am a 31 yr healthy ( as far as I know) female and I think I might have had a seizure. I don't have any history of seizures so im kinda...
My story

11/2018 | 0 Comments

I was first diagnosed with epilepsy on August 27, 2010; apparently they lost me twice, no pulse, nothing. I remember seeing this bright light and a...

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