Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

This is taking over my life

Tue, 05/21/2019 - 15:17
Hello I'm Nicole I was diagnosed with TLE as a child and when I was 14, stopped taking meds, but I think my seizures just changed and never stopped. However eegs keep coming out normal. I have episodes that seem like simple partials, but never generalize. However, it affects my everyday life because when they happen, they happen in clusters and it fries my brain. I am not able to work-I used to teach English as a second language online-because my memory is terrible now and when these episodes happen, my brain slows and sometimes it is even hard to talk. One, I feel like there is someone pushing down on my shoulders. Usually happens when I am standing in the kichen for some reason. Then i feel this awful emotion like extreme sadness and something bad is going to happen. I also feel like I need to lay down and my head feels funny. I usually go lay down and it eventually stops. Second one, I feel like a warmth rising from my stomach all the way to my chest, then I feel like one side of my face droops and feels like jell-o Lately, my back has been tightening and one of my legs feels tight too. This usually comes with a feeling of extreme sadness or impending doom. I try to talk myself through it or listen to music, but most of the time I can't avoid it and I start crying Third one, I could be doing something perfectly normal and then suddenly get hit by this sad feeling that makes me want to cry. Once I start, I can't stop. It is almost as if someone died. Afterward, I am fine, but I feel exhausted. This happened to me yesterday and I slept for hours. I am sorry this is so long. If you have read through this much, I would like to know if anyone has experienced something like this. I don't get deja-vu, but I have had moments where I saw a word and couldn't say it and it came out funny. Once I woke up and it took a few minutes for me to remember where I was even though I was clearly in my own room. Over the years, I have also had visual hallucinations. Seeing colors and wiry things floating toward me as I wake up. I am afraid I will go down the same route I went down 6 years ago and get diagnosed with pseudo seizures or psychogenic. I am willing to accept whatever it is, as long as I can get some help. I hate taking meds but I am willing to, if I can get my brain back.

Comments

1.     My Child suffered the

Submitted by prateek on Mon, 2019-05-27 - 08:04
1.     My Child suffered the first Epilepsy Attack at an age of 10 in his school. Since then our lives changed. We used to live in constant fear of Seizures and this continued for years. When he was 19, he himself found about Neeraj Clinic through online search. We went to their clinic in Rishikesh. After proper check-up, the doctor prescribed us afew medicines. In a span of 7 months we noticed a substantial decline in the occurrence of Seizures. Neeraj Clinic came in as sunshine in our lives. Will suggest you to pay them a visit. If you have been failing in finding the right treatment for Epilepsy, try contacting Neeraj Clinic. I am sharing with you their ContactDetails - +91-6395048809. You can also Whatsapp them on the same number.Website - https://www.epilepsytreatment.org/

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.