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Feel like a fraud

Mon, 04/09/2018 - 11:09
I've had epilepsy since December 2015. My first seizure was one where I lost consciousness...at the gym with a friend...lost bladder control. It was humiliating. It looked like I just passed out, but she noticed that ever so slightly my head shook. I could tell it was different that a fainting episode because everything was white and felt like a dream instead of blacking out and waking up with no memory of it. Then a week later I zoned out and when I "came to" I had an intense sense of dread that I could explain. Went to my PCP and he sent me for an MRI and referred me to a neurologist. MRI was normal and neuro put me on Lamotrigine. That was working fine until my sleep study. That neuro said my dosage should be higher based on my blood levels. So he gave me the dosage increase schedule. When I increased it I started to have suicidal thoughts. A trip to the ER and two hours later - we decreased the dosage. Back to feeling normal with no seizures. That lasted about a year. Then I started having zoning out events...and flushing of my neck/face and memory issues. Had a one hour EEG - showed "abnormal" activity on the frontal temporal lobe. My seizures are apparently simple partial seizures located there. So it's all happening internally and I look totally fine and normal on the outside. I had another one 2/13 and then one 3/29. So they're happening again. :( I'm on driving restriction (90 days with no events in KY). I have a traveling husband and 2 young kids. Life is very hard right now. We added Vimpat to my regimen and I have an appointment for a second opinion at a different epilepsy center. My doctor didn't seem to be reading my chart before suggesting plans of action....so I lost some faith in their care. Anyway - I feel like a fraud because A) my seizures aren't nearly as intense/frequent as many of yours and B) no one can see mine happening so I just feel crazy. I'm feeling very down right now because the driving restriction is forcing me to be dependent on others and is messing with my kids' lives...but I have no other choice. So that's me. Sorry that was long. I'm hoping to learn a lot here.

Comments

You are NOT a fraud and I'm

Submitted by Jason R on Fri, 2018-04-13 - 21:32
You are NOT a fraud and I'm sorry your feeling down I understand the feeling of the driving restrictions I was unable to drive for several years when my seizures started up again after my first surgery. I can only say hang in there and do not let epilepsy run your life! You need to try and stay positive you are fortunate enough to have people who love you and will help and drive for you. Keep trying to find the right doctor it is not an easy thing to do. I went through several Neurologists before finding a Neurologist and Neurosurgeon who were able to help me. I have had a second surgery and seizure free for 22 months. Take care and I know you will find your answer. I hope I can help you in some way, please let me know if you have any questions for me.

Hello, I thought you would be

Submitted by ann23121 on Thu, 2018-05-03 - 05:52
Hello, I thought you would be interested in trying this. I understand what you are facing. I would advice you contact the spiritual Dr. dugo on E -mail: dugo_d&yahoo.com, wattsapp.. +2348064357725. he has a spiritual power to heal you from your sickness totally. Trust me, I also had a similar issue with my daughter 5 years ago. But she is totally free now.

Hello, I thought you would be

Submitted by ann23121 on Thu, 2018-05-03 - 05:54
Hello, I thought you would be interested in trying this. I understand what you are facing. I would advice you contact the spiritual Dr. dugo on E -mail: dugo_d&yahoo.com, wattsapp.. +2348064357725. he has a spiritual power to heal you from your sickness totally. Trust me, I also had a similar issue with my daughter 5 years ago. But she is totally free now.

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