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Looking for Nighttime Seizure Detection Tools/devices for Focal Seizures
Wed, 07/18/2018 - 15:28Topic: Parents & Caregivers
Hi Community,
My 7 year old daughter has focal seizures, often at night time. She makes very little movement, typically throws up, spikes a fever and has great difficulty breathing. She is currently taking Keppra and being evaluated soon to add a second medication. I'm wondering what do other parents do or use at night time to help detect their children's seizures? I just ordered a special pillow she's supposed to be able to breathe through. I'm interested in all suggestions or just hearing how other parents are doing it!
Thanks in advance!
Comments
The throwing up scares me.
Submitted by zacksdad on Thu, 2018-08-02 - 15:04
The throwing up scares me. Aspiration (vomit in her breathing passages) during a seizure is a very real danger. I'm not a fan of baby monitors. If somebody's not watching it 24/7 you could very easily miss something. Not to mention the hacking thing. There's a company called Emfit that makes a monitoring pad that fits under the mattress and is designed to detect the unique motions of a seizure and ignore normal tossing and turning. It's kind of expensive. $600 to $700 or so. The most efficient way would be a pulse ox monitor. The spring loaded sensor fits a finger or toe and when blood oxygen drops below a certain level, the monitor goes off. It should be noted that it is highly unlikely that insurance will pay for any device, at least not without a fight. I used the Emfit when my son was younger, before we got some reasonable control over his seizures.
Have you looked into the
Submitted by mariagonko@gmail.com on Thu, 2018-09-20 - 22:28
Have you looked into the Emfit monitor?
A lot of folks here use a
Submitted by mereloaded on Tue, 2018-07-31 - 18:10
A lot of folks here use a baby monitor. There is a thing called SAMI that was designed with this condition in mind. I didn’t use any, just have a trained ear.