I'm Crying, Venting...I Don't Know What to Say to My Daughter

(((((Hugs))))) to you, I have epilepsy myself for the past 3 yrs and the only thing 10 times worse would be to see my child suffer in any way, let alone this, so my heart and prayers are with you and your daughter. I don't know how old she is but with your support and perhaps when she is old enough letting her share her experiences with others and others sharing theirs will help her. She may even be one of the fortunate ones who with new deleopment or her growth may not always have to fight the battle. Each new day does bring hope and possiblities for all of us. Best wishes for a good day, tomorrow. Rita~ p.s. we all have bad days and I do believe they make us appreciate the good times more.

FWK Hi there. I understand how u feel and it's good to talk it out with someone coz it helps in reducing stress and understanding ur child. At least she can talk and say how she feels, be gratfull for that coz asmall baby would not know how to express himself or herself. My son can hardly talk but i've come to understand him and his feelings through his actions and im always able to tell when he is about to av aseizure. His fits av reduced from 10 to 4 a week and for two weeks we've not taken him for an injection. this has really encouraged encouraged coz atleast i dont av to rush him to hospital all the time. Atleast i try to be possive about it so try to understand ur daughter and talk to her coz my son's doctor told me if ur on medication and u stop the seizures might come back so violently and many. Be strong for ur daughter and dont show her that ur sad coz of the seizures. i know how ur feeling and it can be so trying but u av to fight the feeling and look on the good side of life.it has helped me why not try it coz i found out it is no use being depressed. i hope this helps