Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

ESES or CSWS (LKS specifically) and essential oils

Tue, 11/28/2017 - 17:43
Hello, my son has Landau Kleffner Syndrome and he has been through steroids before and we may be starting them again soon. I am wondering if any parents have done essential oils to help decrease spikes in ESES or CSWS? If so what kind of oils helped your kiddos out? We really want to avoid the steriods because it took such a toll on my sons body the last round we did, we are open to any treatment. He is currently on Depakote, Felbamate, and CBD.

Comments

Hi, my daughter also has LKS.

Submitted by srmontero on Wed, 2017-11-29 - 13:51
Hi, my daughter also has LKS. I haven’t tried any essential oils but wanted to know if you had any success with the CBD. She is on depakote, onfi, and zonisamide, and I’m interested in trying the CBD but our neuro says it can raise the depakote levels.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.