Complex Febrile in older child

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Hi Cofran8487, Thanks so much

Submitted by Anonymous on Thu, 2019-05-30 - 08:55

Hi Cofran8487, Thanks so much for posting. It’s important that you continue to express your concerns to your daughter’s healthcare team and discuss any changes in side effects, behaviors, symptoms, or seizure types. For additional information about febrile seizures please visit, https://www.epilepsy.com/learn/types-seizures/febrile-seizures For help finding an epileptologist please visit, https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist , or an epilepsy center, https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-centerYou may want to consider with your daughter’s healthcare team having a device that can help track her seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with her doctors. https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/about-kids It is common for those who are in caretaker role to feel overwhelmed and scared, but it’s important to remember that you are not alone. It's just as important to make sure you’re taking care of yourself as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf The Wellness Institute, https://www.epilepsy.com/living-epilepsy/our-programs/wellness-institute ,provides tools and strategies to better assist your loved one and support you in your important role. For additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org , epilepsy.com/helpline , where a trained information specialist can connect you to resources, provide referrals & additional support. Additionally, your local Epilepsy Foundation epilepsy.com/localsupport ,can assist in connecting you to resources, support groups, events, and programs in your community.

Hi Cofran8487, Thanks so much for posting. It’s important that you continue to express your concerns to your daughter’s healthcare team and discuss any changes in side effects, behaviors, symptoms, or seizure types. For additional information about febrile seizures please visit,  https://www.epilepsy.com/learn/types-seizures/febrile-seizures For help finding an epileptologist please visit, https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist , or an epilepsy center,  https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-centerYou may want to consider with your daughter’s healthcare team having a device that can help track her seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with her doctors. https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/about-kids It is common for those who are in caretaker role to feel overwhelmed and scared, but it’s important to remember that you are not alone. It's  just as important to make sure you’re taking care of yourself as well.  https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf    The Wellness Institute,  https://www.epilepsy.com/living-epilepsy/our-programs/wellness-institute  ,provides tools and strategies to better assist your loved one and support you in your important role. For additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org , epilepsy.com/helpline , where a trained information specialist can connect you to resources, provide referrals & additional support. Additionally, your local Epilepsy Foundation epilepsy.com/localsupport  ,can assist in connecting you to resources, support groups, events, and programs in your community.

Hi Cofran8487, Thanks so much for posting. It’s important that you continue to express your concerns to your daughter’s healthcare team and discuss any changes in side effects, behaviors, symptoms, or seizure types. For additional information about febrile seizures please visit, https://www.epilepsy.com/learn/types-seizures/febrile-seizures For help finding an epileptologist please visit, https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist , or an epilepsy center, https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-centerYou may want to consider with your daughter’s healthcare team having a device that can help track her seizures, by visiting https://www.dannydid.org/ , and by keeping a seizure diary https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary ,as another self-management tool. These tools may be helpful in identifying & tracking seizures, other symptoms, managing medication & other therapies, recognizing triggers and health events that may affect seizures and wellness, which you can share with her doctors. https://www.epilepsy.com/living-epilepsy/parents-and-caregivers/about-kids It is common for those who are in caretaker role to feel overwhelmed and scared, but it’s important to remember that you are not alone. It's just as important to make sure you’re taking care of yourself as well. https://www.epilepsy.com/sites/core/files/atoms/files/Caregivers%20factsheet.pdf The Wellness Institute, https://www.epilepsy.com/living-epilepsy/our-programs/wellness-institute ,provides tools and strategies to better assist your loved one and support you in your important role. For additional questions, please contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000, contactus@efa.org , epilepsy.com/helpline , where a trained information specialist can connect you to resources, provide referrals & additional support. Additionally, your local Epilepsy Foundation epilepsy.com/localsupport ,can assist in connecting you to resources, support groups, events, and programs in your community.

i don't see any device for

Submitted by Cofran8487 on Thu, 2019-05-30 - 11:55

i don't see any device for sale to track seizures, following that link.

Hi Courtney, Here is a more

Submitted by Anonymous on Thu, 2019-05-30 - 15:35

Hi Courtney, Here is a more direct link you may use to find out more about the various devices... https://www.dannydid.org/epilepsy-sudep/devices-technology/