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Bedwetting.
Mon, 11/20/2017 - 07:20Topic: Parents & Caregivers
I posted several months back. Long story shorter my 8 yo son had an extended EEG recommended by his neuropsychologist. It came back abnormal with several sharp spikes and waves mainly in sleep. He was wetting the bed at least 3 Times a week. She prescribed Trokendi XR, his bedwetting stopped she said it may be related to the meds about a month later the bedwetting came back in full force she upped his meds and it stopped again. Now it’s been 22 days and he’s wet the bed the past 2 nights. Anyone have an experience like this. He was fully potty trained until about 2 years ago until this started. We are in the process of switching neurologist as we have never gotten an answer to any of this and the dr making a medical error. Any advice or thoughts welcome.
Comments
Not sure what medical error
Submitted by Amy Jo on Mon, 2017-11-20 - 12:09
Not sure what medical error the doc made, nothing you describe is an error but there's a lot of room for uncertainty. So, yeah, this is a second vote for consulting an epileptologist to tease out possible seizures issues from other abnormalities. With seizures and seizure medications, one doesn't start at a dose and that's it. One keeps increasing the dose until the issues are controlled or the side effects are too much. However, know that topiramate can have some cognitive impacts for a lot of people and may not be a good choice. I note that since you are already consulting an neuropsych you should be aware of possible cognitive issues with the seizures medications. The upside to the meds is that if poor cognition is from the abnormal activity, that can often be fixed with the right treatment.
medical error???? Have you
Submitted by just_joe on Mon, 2017-11-20 - 12:45
medical error???? Have you researched what can happen during a seizure?? In some the person loses control of normal things. Holding the bladder is only one of them. If your son had stopped his bed wetting and it started again then the medications were stopping seizures that could have caused them. Now medications do need adjusting and I know that with my own experiences. I was the one that had seizures. I was the one that lost bladder control. I was the one that did that while in Jr High school. So when was the last time his dosages were changed? Has he grown much in the time he was diagnosed until now. With most seizure medications it takes 3-4 weeks for the medication to get to the therapeutic levels the dosage is set at. t then takes a month or two to find out if the medication is controlling the seizures. If it is not controlling them all then adjustments are made and the time periods start again. Is he seeing a neurologist that specializes in epilepsy?
You want to be with an
Submitted by RTLEmum on Mon, 2017-11-20 - 11:34
You want to be with an epileptologist at a Level 4 epilepsy center. My son would wet himself when he was having seizures, even small ones. I would want to know in your case that he is not having seizures at night that are causing this. If he is having seizures, his urinary incontinence will likely stop once his seizures are under control. That might require trying different medications and figuring out what kind of epilepsy he has.