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hearing voices
Thu, 04/03/2008 - 13:47Hi everyone.
Hope you're having a good day. Hope I don't sound like too much of a "newbie" but that's exactly what I am.
OK, here's my story.
About 4 weeks ago my 16 year old son began complaining about being unable to sleep. We gave him advice such as lay off the caffine . Then, on 3/25 he had a seizure at school. (he has since had one almost every day and two on one day.) During his seizures he has some "twitching" of his arms and legs but has always been able to get to a safe place. He is able to answer questions with a yes or no or a nod of the head so he never completely looses control. He remains conscious through the seizures and has at least some memory of them though he is very weak afterwards.
We've taken him to the ER (put him on keppra) and have had an MRI and EEG done. Neither showed anything. We're taking him to a neurologist tomorrow and having another EEG done on his orders today.
Maybe the scariest part for us has been the voices. After he had the first seizure he told us that the reason he hadn't been able to sleep was that he'd heard voices. Sometimes the voices are gibberish but other time they tell him things (in his own voice) like "your friends dont' really like you" or that the voices are going to hurt his friends of family. They never tell him to do things and he knows the voices aren't real.
I've read about aura's and know some folks hear voices with seizures, but haven't been able to find much to tell me what the voices actually usually say. Is what my son is hearing common?
His behavior hasn't changed except he has become even more attached to his friends/family. He's a great kid and everybody loves being around him, but this is scary stuff for all of us.
Any "words of wisdom" from the voices of experience would be much appreciated.
HiI have had epilepsy for
Submitted by MarlenEllen on Mon, 2017-05-01 - 08:28
HiI have had epilepsy for five years after I had a stroke. I have heard voices/sounds twice only (fortunately - it it kind of scary). The first time was not long after I was diagnosed with epilepsy. I went upstairs i our house and opened up the door to a room, and I heard a couple of people moaning in the corner of the dark room. I knew there could not be anyone there and managed to put on the light (if I had been home alone that day I wouldn't been so brace - I would have ran out of the house ) The next day I had a seizure and was admitted to the hospital. The second time happened just a couple of days ago. I was out driving (I have my license back) - and suddenly I heard this strange knocking sounds on the roof of the car (as if someone wanted to come in) - my heart pounded - it was scary.