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THE WORLD & EPILEPSY
Tue, 10/04/2011 - 11:31Hi Guys
I fell alone anyone there? I keep having AURA'S, due to my change of med and the heatwave.... Finaly the penny drops with my mum. She ALWAYS goes into PANIC MODE everytime I have an aura or fit. Something changed yesterday, I had an aure @ her house and had to leave because I felt secord of her because of her past expiriance.
I was @ the st waitning for a train, I text my hubby and told him and he said to keep calm and drink plenty of water. The problem was I hadn't had any water left but got home just before another aura.
ANYONE THERE?
butterfly17 x
Comments
Re: THE WORLD & EPILEPSY
Submitted by butterfly17 on Wed, 2011-12-28 - 09:15
Hi ya
My mum is the kind of person NOT to take advice and when she does, she ague's that's she's always right... So you see I am scrood
Hi ya
My mum is the kind of person NOT to take advice and when she does, she ague's that's she's always right... So you see I am scrood
Re: THE WORLD & EPILEPSY
Submitted by princesskyles on Thu, 2011-12-29 - 18:09
She might not take advice easy but use give and taketeach what you need. I educate people on epilepsy a lot. I do presentations and hand out information sheets for all different things and many people say to me things like...lthe last one was "my neice has epilepsy Ive seen plenty of seizures I dont need that or to come to the presentation although I will be around" I tell everyone...you can never know too much about epilepsy. It is different for every person. And it change over time for that one person.
- Me and my sister both have epilepsy
- We both have it for different reasons
- We have different types of seizures, for the most part
- We both have have absense seizure, butwe both have different actions during an absense seizure
- Her epilepsy has basically stayed the same her entire life...mine is constantly changing. I think I just had my first nocturnal seizure about 2 weeks ago, and i have been having them about every second night since. I have a few seizures a day (that are noticed). My sister has a few a month
She might not take advice easy but use give and taketeach what you need. I educate people on epilepsy a lot. I do presentations and hand out information sheets for all different things and many people say to me things like...lthe last one was "my neice has epilepsy Ive seen plenty of seizures I dont need that or to come to the presentation although I will be around" I tell everyone...you can never know too much about epilepsy. It is different for every person. And it change over time for that one person.
- Me and my sister both have epilepsy
- We both have it for different reasons
- We have different types of seizures, for the most part
- We both have have absense seizure, butwe both have different actions during an absense seizure
- Her epilepsy has basically stayed the same her entire life...mine is constantly changing. I think I just had my first nocturnal seizure about 2 weeks ago, and i have been having them about every second night since. I have a few seizures a day (that are noticed). My sister has a few a month
Re: THE WORLD & EPILEPSY
Submitted by Spike. on Tue, 2011-10-04 - 18:30
I'm here! And have a question. Has your mom ever taken the time to actually learn anything that pertains to seizures and epilepsy? If she has not, then she needs to do her homework, by reading information available over the Internet and in books. When a person learns more in detail about seizures and epilepsy, it can help lower the amount of "fear" that has been built up in a person's thoughts and feelings.
Bruce (I'm not a doctor, but instead, an epilepsy support group leader, epilepsy advocate, who has epilepsy.)
I'm here! And have a question. Has your mom ever taken the time to actually learn anything that pertains to seizures and epilepsy? If she has not, then she needs to do her homework, by reading information available over the Internet and in books. When a person learns more in detail about seizures and epilepsy, it can help lower the amount of "fear" that has been built up in a person's thoughts and feelings.
Bruce (I'm not a doctor, but instead, an epilepsy support group leader, epilepsy advocate, who has epilepsy.)