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Jeavons Syndrome & Altered Mental Status Help

Sat, 09/23/2017 - 01:02
hey there. So I was diagnosed with epilepsy when I was 15 after having 3 seizures that put me in the hospital my whole life. I have been doing the whole eye flutter thing since I was 3 years old but they never knew what it was. I am now 25 years old and have been trying all sorts of things to stop from the eye flutters. I am in grad school, work, really active, internships etc....somedays it leads to about 15-17 hour days. I know sleep is a part of it. Recently I was hospitalized for altered mental status (AMS), overexhaustion, and dehydration. They never did and EEG so they could never classify it as a seizure although I experienced all the post issues where my memory was struggling and hand was numb/couldn't write for a couple days. I had been taking CBD and likely overdid that leading up to this episode. The CBD has helped me in the past to stop the eye flutter and I'm wondering if that is what actually had stopped my from going into a full blown seizure this time, so I have mixed feelings about it. Now (a few weeks later) I have gotten more sleep and fixed my schedule more. I am however having issues sleeping and jumping awake, I get nervous if I need to wake up early for internships or classes, and I still stumble on spelling or writing sometimes. I know part of it is just mental but wondering if anyone else has had this issue after they have episodes? I know Jeavons is pretty rare but may happen for just epilepsy in general? ANY thoughts on Jeavons or meds or CBD or tricks for sleeping/anxiety will help. Thank you!!


My daughter also has Jeavons.

Submitted by bradlevin on Sat, 2019-03-09 - 13:16
My daughter also has Jeavons.  Is the CBD helping you still? Can I ask what you are taking?  

I also have a daughter with

Submitted by Aquist on Tue, 2019-10-08 - 00:31
I also have a daughter with Jeavons, always looking for more info on alternatives to medicine.

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