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Deja vu? Am i having seizures?
Thu, 06/09/2011 - 12:41Comments
Re: Deja vu? Am i having seizures?
Submitted by B208 on Sun, 2011-06-12 - 13:26
Re: Deja vu? Am i having seizures?
Submitted by T Davis on Mon, 2011-06-13 - 02:42
Tadzio,
What you've shared has been so helpful! I don't know where to begin, but I'll keep it short. My first seizure I remember was in high school and never told anyone. I had some deja vu and maybe some memory issues, but my first TC, I was 19, then hospitalized for three days & forced them to let me out because they knew nothing. Struggled with migraines and some what I know now are simple & peti mal seizures over time, but wasn't until I was in my early 30's things progressed rapidly. I've had tests, nothing. At the time my Neurologists said it was a mild case of Epilepsy & I should be fine ~ it wouldn't get any worse. I still didn't tell anyone. I shared it with my husband who would witness them, but when I was alone, I wouldn't say a thing, embarrassed I suppose. Now fast forward, I'm 39 and no longer working, driving and I'm taking 2500 mg Keppra XR daily & 150 Vimpat twice daily. My last seizure was four days ago, unless I've had them while I sleep since, this is common. I now see an Internal Med. Dr. & a new Neurologist & will see an Epileptic (sp) specialist this week.
Frustrated with the aura's & prodromel systems, horrible migraines, times when I cannot speak, find words, think, so confused, and like you I can't write either, but can type - who knew! Memory is bad, my process thinking to accomplish something could take me forever some days! The worst for me is the prodromel systems I'll have them for days before my seizures show up and for days while they're occurring. Have you read, heard of or do you possibly have any extreme prodromel systems?It's almost like I have a severe case of the flu. Extreme nausea, indigestion, upset stomach, insomnia, fever, muscle cramping in my legs & feet, loss of appetite, headaches, times of intense sweating, exhaustion, speech issues, confusion, aura's and I could name more. They start with these symptoms by the second day I'm having seizures in the afternoons & through the night. In 3 to 4 days they're gone. Only to return again in a couple more days. It wasn't always this bad, as I said it progressed with intensity over time, but I think my Dr.'s think I'm crazy. I am getting better with the meds. I can go up to ten days now without any symptoms & seizures. All I'm told right now is I have TLE with complex partial seizures, mostly left but will occasionally spread to the right. I've probably have had only had 5 Tonic Clonic's total in my life. They want to run more test, which last year I finally had a seizure during my eeg. First time ever in over 20 years . My family now knows. I had an intense complex partial while driving on our family vacation last year. My son knew instantly and took the wheel, I told him only days before. Anyway, I'm rambling. It's just so frustrating that I get no really "good" information my Dr.'s and they are always so ready to add more drugs!
One other note, my most active time now with seizures is the week of my cycle and 7 to 10 days before, much better than 6 days every week with 50 to 60 seizures a month. That was where I was just 8 months ago. It's late, hope I made sense.
Thank you again for sharing.
Tadzio,
What you've shared has been so helpful! I don't know where to begin, but I'll keep it short. My first seizure I remember was in high school and never told anyone. I had some deja vu and maybe some memory issues, but my first TC, I was 19, then hospitalized for three days & forced them to let me out because they knew nothing. Struggled with migraines and some what I know now are simple & peti mal seizures over time, but wasn't until I was in my early 30's things progressed rapidly. I've had tests, nothing. At the time my Neurologists said it was a mild case of Epilepsy & I should be fine ~ it wouldn't get any worse. I still didn't tell anyone. I shared it with my husband who would witness them, but when I was alone, I wouldn't say a thing, embarrassed I suppose. Now fast forward, I'm 39 and no longer working, driving and I'm taking 2500 mg Keppra XR daily & 150 Vimpat twice daily. My last seizure was four days ago, unless I've had them while I sleep since, this is common. I now see an Internal Med. Dr. & a new Neurologist & will see an Epileptic (sp) specialist this week.
Frustrated with the aura's & prodromel systems, horrible migraines, times when I cannot speak, find words, think, so confused, and like you I can't write either, but can type - who knew! Memory is bad, my process thinking to accomplish something could take me forever some days! The worst for me is the prodromel systems I'll have them for days before my seizures show up and for days while they're occurring. Have you read, heard of or do you possibly have any extreme prodromel systems?It's almost like I have a severe case of the flu. Extreme nausea, indigestion, upset stomach, insomnia, fever, muscle cramping in my legs & feet, loss of appetite, headaches, times of intense sweating, exhaustion, speech issues, confusion, aura's and I could name more. They start with these symptoms by the second day I'm having seizures in the afternoons & through the night. In 3 to 4 days they're gone. Only to return again in a couple more days. It wasn't always this bad, as I said it progressed with intensity over time, but I think my Dr.'s think I'm crazy. I am getting better with the meds. I can go up to ten days now without any symptoms & seizures. All I'm told right now is I have TLE with complex partial seizures, mostly left but will occasionally spread to the right. I've probably have had only had 5 Tonic Clonic's total in my life. They want to run more test, which last year I finally had a seizure during my eeg. First time ever in over 20 years . My family now knows. I had an intense complex partial while driving on our family vacation last year. My son knew instantly and took the wheel, I told him only days before. Anyway, I'm rambling. It's just so frustrating that I get no really "good" information my Dr.'s and they are always so ready to add more drugs!
One other note, my most active time now with seizures is the week of my cycle and 7 to 10 days before, much better than 6 days every week with 50 to 60 seizures a month. That was where I was just 8 months ago. It's late, hope I made sense.
Thank you again for sharing.
Re: Deja vu? Am i having seizures?
Submitted by 3Hours2Live on Fri, 2011-06-10 - 03:37
Hi B208, I now source the cause of all of my very intense deja vu (that I can't explicitly manipulate), as the result of partial seizures of Temporal Lobe Epilepsy (TLE). I believe my TLE started in very early childhood from brain damage caused by frequent bouts of periodic cyanosis from LQTS, then tonic-clonic seizures while coming back to life (for me, LQTS still seems to be a problem during heavy exercise, and is probably another problem sometimes during phases of secondarily generalized tonic-clonic seizures). When my physical movements aren't impaired during a seizure deja vu, I believe the deja vu is a simple partial seizure of TLE often included under the label of an "aura" from seizures of epilepsy. I also have aura of "intense visceral fear", "ecstatic divine bliss", and "blase" with bouts of synesthesia. The "fear" aura was most common decades ago (and when very intense for a couple minutes, would then often quickly "cascade" to "bliss" ("right-to-left" amygdala Anterior Commisure intercalation???)), presently, the "bliss" aura is most frequent for me. More general info on the amygdala is at: http://www.brainwave-entrainment.com/winshakti/ref_amygdala.htm The relationship more to deja vu is at: http://www.shaktitechnology.com/dejavu.htm I have aura with both painless and painful migraines (blurring from "prodromes" with occasional much "cloudier" and "annoying" deja vu versus feeling "dangerously well" http://books.google.com/books?id=7dE7PxgnyvoC&printsec=frontcover&dq=Migraine+Sacks&hl=en&ei=zWLxTb6JIommsQOwuN29Dg&sa=X&oi=book_result&ct=result&resnum=1&ved=0CDkQ6AEwAA#v=onepage&q=dangerously&f=false ) , but migraine aura generally come on slowly, last much longer, and slowly dissipate (and are of vast difference in sensations), while aura from and with the ictus of epilepsy are usually nearly spontaneous, and less than 5 minutes in duration (the pre-ictal and post-ictal migraines that are frequent with epilepsy can cause much confusion over which is which (most doctors can't tell the difference with any objectivity or validity)). Less extreme degrees of deja vu can result from both Pavlovian and Operant Conditioning, and is often experienced by most everyone at certain moments. A magnus opus novel of many such sensations is Marcel Proust's "In Search of Lost Time", at more than 2,000 pages long. Mere coincidence with environmental factors around an epileptic ictus can condition the environmental factors to be a conditioned stimulus for a usually lesser response situation (i.e., if I'm picking up my cat, and by coincidence I have an epileptic simple partial seizure of very intense fear, my cat becomes a conditioned stimulus associated with intense fear (if I'm very quick learner, one such coincidence may be enough to require a long extinction (the cat slowly loses the ability to instill fear in me)). The "cause" of the conditioned fear is different than the "cause" of the ictal fear, but most neurologists and psychiatrists are too careless, or stupid, to realize this. Most all aura of epileptic seizures (including deja vu) suffers from this professional carelessness and stupidity, and much of the motor phenomena with epileptic seizures suffers the professional same (diplomacy doesn't work with such powerful, mutually assuring all-knowing deluded experts). During neurological examinations and tests (even with lengthy Video-EEGs), the effects of coincidental conditioned responses totally invalidate all of the protocols used to distinguish between epilepsy and hypothetical manifestations of psychiatric constructs charted for mental disorders. Calling Classical and/or Operant conditioning a Mental Disorder is like calling "having learned the alphabet" a Mental Disorder (a notorious example is "bicycling seizures" of an alleged psychogenic "non-epilepsy"). The word "trigger" is often semi-standardly used with the Reflex Epilepsies, where a specific stimulus most always immediately induces a seizure, to the extent that some people with a Reflex Epilepsy can induce an epileptic seizure at will. A few people can willingly self-induce pleasurable seizures, and they are then accused of abusing their epilepsy. "Kindling" of TLE simple partial seizures into more severe and debilitating complex partial seizures and/or secondarily generalized tonic-clonic seizures over the long term is a major future danger (for me, it took a little more than three decades before secondarily generalized seizures became a major problem). A few of the newer Anti-Epileptic Drugs (AEDs) are believed to minimize kindling at even low doses that don't otherwise stop the simple partial seizures, but also don't result in major AED side-effects at such low doses (the book "Kindling 6" mentions levetiracetam (Keppra)). Untreated TLE through adolescence was cited to greatly increase the likelihood of the "Geschwind Syndrome" of lasting skewed personality traits. The present experts currently argue over what a personality trait is, as versus a personality factor. Then the experts rely on tests like the Minnesota Multiphasic Personality Inventory (MMPI), as if the word "Personality" has no useful meaning. Another generally discarded set of theoretical phenomena with epilepsy over a period of decades is "Forced Normalization (as differentiated from inter-ictal and post-ictal psychois), where effective control of seizures results in severe psychosis, which remits with seizures being allowed to return. My seizures that now most often lead to secondarily generalized tonic-clonics without using Keppra, come in a little less than monthly cycles with still no discovered correlations (the period's about as long as a lunar cycle on average over the years, but doesn't stay in sync with lunar cycles, geo-magnetic cycles, etc.). My daily simple partial seizures are totally random. Conditioning for non-epileptic deja vu is fairly simple (much like Harry Lorayne's memory tricks); in far hindsight, I previously, and inadvertently, noticed the function of the number of clues for the intensity of epileptic deja vu conditioning (too few clues, like the Great Salt Lake desert, minimizes the intensity; too many clues, like the mountain forests in Colorado, also minimizes the intensity; while just a moderate number of clues maximizes the coincidental intensity, like the Red Rocks of New Mexico and around Sedona, Arizona (places now with more mystical and multi-cultural religious significance being recognized by many people)). Many of my seizures also impair my verbal behaviour (sometimes where I can't speak, read, or write, at all, for very short periods, but still can perfectly type meaningful sentences during the period). The book "Language & Epilepsy" by Lebrun & Fabbro (2005), has many interesting similar examples. Tadzio