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My boyfriend has bilateral TLE and has changed over time.....

Sat, 08/14/2010 - 15:35
My boyfriend has bilateral TLE and has taken dilantin,  frisium and now only taking tegretol CR. Because I had the pleasure of knowing him prior to having Epilepsy, I can honestly say that he has changed tremondously. On dilantin and Fisium he has sever mood swings and would be short fused all of the time. He became withdrawn and also let go all intimacy in our relationship. Tegretol has calmed the anger and has decreased tension however the intimacy has worsened if that is at all possible. After a few years I finally brought it to his attention and very calmly he told me that it was him and not me. We were 2 people who were always sexually active and now we can go 1 year without any form of intimacy. I didn't understand and he didn't give any details. He said he noticed as well and that he would try. He hasn't yet and I've has to speak with him again. I honestly had to ask him if he was cheating on me and he said no. He said he couldn't explain what was happening to him. I started to look it up and saw that AED's can cause low libido and lack of sexual desire. I urged him to speak to his Neuro about it and he said that he would. He has had 2 appts since and can't seem to bring it up. What can I do because its just indicating to me that he doesn't care. I have already enough to keep inside ie my feelings of rejection, hurt, and loneliness. Why is he doing this to us? I have been nothing but understanding, caring and loving with the Epilepsy and our situation as a couple. Please if anyone has insight, please share. 

Comments

Re: My boyfriend has bilateral TLE and has changed over time..

Submitted by clarissoul on Thu, 2010-08-19 - 13:20
I wrote about this same issue last fall. I wish there was more information for partners and spouses. Especially coming from men (admitting the issue, dealing with doctors), however, I'm finding the subject isn't new. Still frustrating, either way. I empathize with you. I'm having the same issue with my husband and feel very stuck. Lack of desire is not easy for people to comprehend, when we've been cultured that "all men" want it or it's something we're doing or not. So over, "just strip in front of the tv," comments like that. It's medical/psychological, much deeper than how I'm trying. He doesn't at all. The frustration has led me to infidelity (which I don't advise), but years on end, fighting over it, accusations (I too thought he was up to other things). Reality was/is, it's just not an issue for him as if it doesn't exsist. It's very difficult as a woman. I don't feel like a lady, nor human somedays. My husband is very attractive, very well built (he works out alot). Many people think we are active in the bedroom; so not true. His short, snippy temperment is a problem as well. Reality; things are what they are. He's going to have to be on medication forever. He won't listen to me. I thought his new doctor could help. Seemed helpful at first, but only offered three other drug choices. From my research, they'll make him worst. He nods off like a dope addict. Anti-social. I've been accused by family (his) of keeping him in a way, from get togethers. Not true. I touch him, he snaps on me. Threatens me. Can't just use the cheat card. It's not easy going years at a time and feeling like someethings wrong w/you when someone else won't admit there are issues with them. Things would be so different if he'd take the time to be intimate w/me; refuses. Not his need so, get lost attitude. Again, the cheat card. We use to be bunny rabbits before his dosage increased and increased. Now, he pretty much lives in the living room, I live upstairs. Talking to him either results in a fight or he shuts down. I can't live like this anymore. Truly need professional help to get him to a point where he's more functional in our marriage. We've been married 14 years. I would love to have him back as much as I can get him, but at this point, I feel all I can do is divorce. Feels like kicking someone when they're down, but it's not been overnight or two years. Ya know? I'm ready to live again, love again, move on, not around someone. I just wish I'd known as much now, when problems began. I took so much out on me. He has 0 accountability. Some can say, "Well, geez, he has a health issue". Point taken, but what about me? You? Other spouses dealing w/the isolation. Joining a group to keep me busy and live around him and my neglected needs isn't exactly marriage.

Re: My boyfriend has bilateral TLE and has changed over time..

Submitted by mks5288 on Wed, 2010-09-29 - 00:29

Hi Claris,

 I can literally "ditto" you on everything that you wrote. You seem to be living the exact same life as myself, it is almost incredible. Although it is comforting to know that others are experiencing the same issues, it is very unfortunate and sad that have to go through it.

 

Would love to live and enjoy life again without a negativity or negative comments, because I'm tired of the excuses and me misunderstanding or not understanding. I will be fair to say that I have given up my happiness to understand and bare the burden for us and it is totally unacknowledged.

I wish you well and all happiness with your decision. Would love to hear from you again!

mks5288 

Hi Claris,

 I can literally "ditto" you on everything that you wrote. You seem to be living the exact same life as myself, it is almost incredible. Although it is comforting to know that others are experiencing the same issues, it is very unfortunate and sad that have to go through it.

 

Would love to live and enjoy life again without a negativity or negative comments, because I'm tired of the excuses and me misunderstanding or not understanding. I will be fair to say that I have given up my happiness to understand and bare the burden for us and it is totally unacknowledged.

I wish you well and all happiness with your decision. Would love to hear from you again!

mks5288 

Re: My boyfriend has bilateral TLE and has changed over time..

Submitted by clarissoul on Thu, 2010-08-19 - 14:21
Plus..the rejection is the hardest part. I wish I had answers. Suggesting ED drugs, which we haven't tried, truly isn't the answer either. Who wants to be w/someone that feels like they're just letting you do it. It's a big circle, sister. Do some serious thinking. When you have some sort of answer, something we may be able to bring to light (besides discussing it, which I'm proud to see), let me know! Need help too.

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