Switching from Keppra to CBD Oil

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Hello everyone! My name is Julia , and I am 19 years old. I have been doing some research for a long time, and have kind of given up with doctors, and was just hoping to get some advice from other people. Anyways, I got my first seizure when I was a freshman in high school, and was sent to the hospital. They said everything was fine, and that all the tests they ran came back completely normal, so no medication was needed. The doctor even said if I get another one, to not worry about it. Well fast forward to junior year I got sick with the flu, and was taking various forms of antihistamines (dayquil/nyquil/theraflu). I guess I was taking too much medication, so I ended up having 2 seizures. My mom called 911 and I was sent to the hospital. When they were wheeling me to get an MRI, I had another seizure. So they ended up giving me an IV to stop my seizures. And then they asked my mom if we would like to get me started on some medication. Not knowing any better, we agreed to keppra. And I started out taking 500 mg twice a day. From the very beginning, I began to have mood swings (very angry and upset), fatigued, not able to focus, and weight gain that lead to my depression. Eventually I had enough, even though I didn't have any seizures while taking keppra, I had asked to switch medication. So they suggested that I try vimpat. Even worse. The first day that I took it, I almost immediately had a seizure. And my mom did not like the idea of me having another one, so we switched back keppra the next day. So eventually I gave up and stayed on keppra for a while. I asked my doctor later on (about a year) if I was able to get off/lower my medication, and he told me no, not until I have been seizure free for like 5 years. But I refused to listen, and demanded to try to get completely off. So I began to lower my medication to 250 mg twice a day instead of 500 mg twice a day. Everything was good, then lowered it to 250 mg once a day. Everything was fine, until I was on my final day of being completely off, and I had a seizure. So my doctors told me that since I was fine on the 250 mg twice a day, to keep me on that amount. So that is what I stayed on, and am currently on. So basically I again, became seizure free for the whole time until one night I went to my friends house, and she had cat that I didn't know about, and I am very allergic. Not knowing that benadryl was an antihistamine, I had another seizure. Everything was fine, just had one and done. But feel as if I know what the causes of my seizures are- antihistamines (and the vimpat...), and I strongly believe that I do not need medication. The amount of depression (somewhat caused by weight gain) that I constantly feel is not healthy, and I will do just about anything to get off of pharmaceutical medication. I hear a lot of good things about CBD oil, and how some people are able to get completely off their medication while using CBD when weaning off. I understand that my situation is minor, and that the amount of keppra I take is very low, but I still would like to try to get off medication. And I would not want to try switching/mixing different anti-seizure medication. I was just wondering if anyone has had any luck with CBD oil, or has any advice for me regarding getting completely off of medication, since I haven't really heard anyone that has a similar situation like me before. Thank you in advance!

Comments

Hey Julia,I'm glad I found

Submitted by beefstrobehnoff on Tue, 2017-12-05 - 09:48

Hey Julia,I'm glad I found your post because this situation applies to me as well! I had my first seizure at 16 and have only had 3 total in my lifetime (none for the last 3-4 years). I started with depakote but that was awful and made me so depressed. I changed to 500mg 2x a day (1000mg total) of IR keppra, but it frustrates me because every doctor I've talked to does not even seem willing to discuss the possibility that it may be something else - all MRI's, EEG's, and CAT scans have always come back 100% normal. I had severe hypoglycemia as a kid and may have some form of diabetes (never checked unfortunately), and each seizure I had was related to rigorous physical activity without eating. I don't think that's the only cause but no one is even willing to consider it - just as you said it's always "just take the medicine or try something else." With that being said, I've done a lot of research on CBD recently (not that the internet is always the best source of information, I know). It seems to be helpful to many people but I'm afraid to stop taking keppra altogether as I have not had a seizure for years and don't want to have another one. I truly believe I don't need the medicine, but the last one I had was a result of me being stupid and saying "I don't need this!" and stopping cold-turkey (took about 2 weeks for me to have one after that). I hate the side effects of keppra, which makes me feel like a zombie and go through random angry mood swings - I am not that kind of person! I would rather not take any sort of chemical if I don't have to and would prefer a natural alternative. I recently found a few articles which state that CBD can actually NEGATIVELY interact with AED meds like keppra by blocking or using the same liver enzymes that keppra does. I think the long-term answer for me would be to stop keppra and only take CBD... but that is a terrifying thought.Have you had any luck with this or talked to anyone else who could give you insights on this? I'd love to know! Thanks!

Hey Julia,I'm glad I found your post because this situation applies to me as well!  I had my first seizure at 16 and have only had 3 total in my lifetime (none for the last 3-4 years).  I started with depakote but that was awful and made me so depressed.  I changed to 500mg 2x a day (1000mg total) of IR keppra, but it frustrates me because every doctor I've talked to does not even seem willing to discuss the possibility that it may be something else - all MRI's, EEG's, and CAT scans have always come back 100% normal.  I had severe hypoglycemia as a kid and may have some form of diabetes (never checked unfortunately), and each seizure I had was related to rigorous physical activity without eating.  I don't think that's the only cause but no one is even willing to consider it - just as you said it's always "just take the medicine or try something else." With that being said, I've done a lot of research on CBD recently (not that the internet is always the best source of information, I know).  It seems to be helpful to many people but I'm afraid to stop taking keppra altogether as I have not had a seizure for years and don't want to have another one.  I truly believe I don't need the medicine, but the last one I had was a result of me being stupid and saying "I don't need this!" and stopping cold-turkey (took about 2 weeks for me to have one after that).  I hate the side effects of keppra, which makes me feel like a zombie and go through random angry mood swings - I am not that kind of person!  I would rather not take any sort of chemical if I don't have to and would prefer a natural alternative.  I recently found a few articles which state that CBD can actually NEGATIVELY interact with AED meds like keppra by blocking or using the same liver enzymes that keppra does.  I think the long-term answer for me would be to stop keppra and only take CBD... but that is a terrifying thought.Have you had any luck with this or talked to anyone else who could give you insights on this?  I'd love to know! Thanks!

Hey Julia,I'm glad I found your post because this situation applies to me as well! I had my first seizure at 16 and have only had 3 total in my lifetime (none for the last 3-4 years). I started with depakote but that was awful and made me so depressed. I changed to 500mg 2x a day (1000mg total) of IR keppra, but it frustrates me because every doctor I've talked to does not even seem willing to discuss the possibility that it may be something else - all MRI's, EEG's, and CAT scans have always come back 100% normal. I had severe hypoglycemia as a kid and may have some form of diabetes (never checked unfortunately), and each seizure I had was related to rigorous physical activity without eating. I don't think that's the only cause but no one is even willing to consider it - just as you said it's always "just take the medicine or try something else." With that being said, I've done a lot of research on CBD recently (not that the internet is always the best source of information, I know). It seems to be helpful to many people but I'm afraid to stop taking keppra altogether as I have not had a seizure for years and don't want to have another one. I truly believe I don't need the medicine, but the last one I had was a result of me being stupid and saying "I don't need this!" and stopping cold-turkey (took about 2 weeks for me to have one after that). I hate the side effects of keppra, which makes me feel like a zombie and go through random angry mood swings - I am not that kind of person! I would rather not take any sort of chemical if I don't have to and would prefer a natural alternative. I recently found a few articles which state that CBD can actually NEGATIVELY interact with AED meds like keppra by blocking or using the same liver enzymes that keppra does. I think the long-term answer for me would be to stop keppra and only take CBD... but that is a terrifying thought.Have you had any luck with this or talked to anyone else who could give you insights on this? I'd love to know! Thanks!

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