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Siezures and Medication

Thu, 10/18/2018 - 12:28
Hello everyone. I am new to this website. I honestly am not sure what I should do anymore. I have a 5 year old daughter who has absence seizures. She was diagnosed about 2 years ago. At first she was switched on and off of medication trying to find the right one, then the right one was found, Valproic acid. She was on this medicine for over a year then started having her seizures again so was recently switched to Onfi. Out of nowhere behavior problems started and not just your average issues. I am to the point where I am going to have to take her out of kindergarten and start homeschooling her. I'm not sure is this medication related or is this another underlying issue. I have researched so much lately and am not sure what to think at this point. Any advice would be great

Comments

Hi~ I'm sorry to hear of your

Submitted by littleaye on Thu, 2018-11-15 - 17:55
Hi~ I'm sorry to hear of your challenges, I am going through the same issue with my 5yr old son.  We are about to change his med again, 3rd change in 2yrs, because he is not responding to medications.  He's tried Trileptal and Depakote.  We just left the hospital the other day after an EEG and my doctor gave me three choices of meds in this order~ 1. Lamictal, 2. Zonegram 3.  Onfi.  She is swaying me towards Lamictal because my son is already having behavioral issues and both Zonegram and Onfi can cause more behavioral issues, especially Onfi.  Lamictal and Depakote are the two choices that have mood stabilizers and some people say Trileptal does too.  Depakote helped his seizures and there was no behavior but was in such a fog he disappeared.  Trileptal didn't seem to do anything but increase his behavior but it could also just be that was going to happen anyhow. Lamictal is also one of the cleaner medications in side effects, especially long term, but there is the fear of a severe rash but it is very uncommon.  This is what I was told by my Dr at NYU.  Hope it helps or helps you research further.  good luck and keep breathing deeply.

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