Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
I Have Epilepsy
Sat, 07/26/2008 - 20:11Comments
Re: I Have Epilepsy
Submitted by butterfly17 on Mon, 2013-09-30 - 19:12
Re: I Have Epilepsy
Submitted by just_joe on Mon, 2013-10-07 - 22:20
So welcome to the club. Understand you have limits. I too have epilepsy but I also can dream many of those dreams have been changed from time to time. You see I too hate some of the things but you also need to understand that there are a loy of thing that are completely different now.
I was diagnosed with epilepsy in 1963 I had seizures from the year before. I have been delaing with seizures for over 50 years. Deal with it and live with it. When I was diagnosed people with epilepsy were still being put in homes away from the public. In teh 1970's epileptics were still not given marriage liscenses in some states.
If you are 35 or younger you do not know nor would you care to even think about much of what we went thru.
Deal with the issue before you. But don't stop dreaming. My dreams changed as do roads which have been expanded then changed into highways. I was and have always liked working with my hands. Oh well I could.t take shop. So I did something other junior couldn't do. I could take a motor apart snd put it together on paper of in my drive. I also loverd cooking and was being trained to be a roving chef. I got too hot too fast and had to quit working period for 6 months. I still cook and have family members calling me for recipes now and tehm. SO you see dreams have to change now and then.
Deal with it and go on
Joe
So welcome to the club. Understand you have limits. I too have epilepsy but I also can dream many of those dreams have been changed from time to time. You see I too hate some of the things but you also need to understand that there are a loy of thing that are completely different now.
I was diagnosed with epilepsy in 1963 I had seizures from the year before. I have been delaing with seizures for over 50 years. Deal with it and live with it. When I was diagnosed people with epilepsy were still being put in homes away from the public. In teh 1970's epileptics were still not given marriage liscenses in some states.
If you are 35 or younger you do not know nor would you care to even think about much of what we went thru.
Deal with the issue before you. But don't stop dreaming. My dreams changed as do roads which have been expanded then changed into highways. I was and have always liked working with my hands. Oh well I could.t take shop. So I did something other junior couldn't do. I could take a motor apart snd put it together on paper of in my drive. I also loverd cooking and was being trained to be a roving chef. I got too hot too fast and had to quit working period for 6 months. I still cook and have family members calling me for recipes now and tehm. SO you see dreams have to change now and then.
Deal with it and go on
Joe
Re: Epilepsy
Submitted by tcameron on Sun, 2013-10-13 - 20:27
I'm seeing an epileptologist, who recommended that I have a L temporal lobectomy. I'm terrified; but also of NOT having it. Our brains make electrical 'pathways' with each seiz, which makes it easier to have more and makes the epilepsy worse. The brain damage isn't only caused by seizures, but also from several concussions I've experienced w/ my drop attacks. It took several years to finally convince myself to wear a helmet. Now I'm afraid I'll get early dementia. I don't know if the continued seizures are more damaging to the brain than the lobectomy. If it was a R lobectomy, I'd have it w/ no questions asked. A L lobectomy is much more dangerous, which why I'm terrified. Which is going to damage my brain more? Continued uncontrolled drop seiz. (now w/ a helmet) or a L temporal lobectomy?