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Feeling a bit like Alice in Wonderland on Topamax!

Thu, 04/03/2008 - 23:28
Hi there, I have been taking Topamax now for around 8 months. Every few days I experience severe burning throughout my head, and sometimes the room even seems to move in waves, and I know this probably sounds completely nuts!...but objects & people seem to shrink in size..as though from 'Alice in Wonderland' at first it was a little funny, but now it is frightening. I have told my neurologist of my concerns, and he has told me to hang in there. I have started taking different vitamins and changing my diet etc, and this has helped a lot, but unfortunately these symptoms come back. Has anyone else experienced these symptoms on Topamax?? Cheers! Summer :)

Comments

Wow! You must have had some

Submitted by Browneyedgirl01 on Wed, 2019-02-06 - 11:17
Wow! You must have had some great insurance. My son was on his father's better insurance when he began to get seizures at age 16 years old.. ALL THAT WAS DONE HERE WAS AN EEG. I GOT 1 CONSULTANT AT EMORY CLINIC IN ATLANTA. ALL I WAS TOLD IS ORIGIN IS IN A VERY BAD AREA. I SUPPOSE THAT MEANS NO SURGICAL TREATMENT EVER POSSIBLE?? I TOLD DOCTORS THERE HE GOT NO AURA OR ANY PREWARNING MOST EPILEPTIC GET PRIOR TO GRAND MALS. HE IS 29 NOW.  ON Keppra. Generic. More often seizures with generic. Blog on that too. Last yr increased him 1,000 mg a day on next RX. Had increase but milder seizures x 4 by 2 months. Same NUEROLOGY GROUP since age 16. Healthcare has forced many doctors here to return to hospital care ONLY. His great Nuerologist who was very very through, she went to hospital care ONLY along with several more. So now calling OFFICE N new Dr week on end gets no replies. I WAS AN RN. After no replies, I read blog on Keppra generic causing more eizures. So I backed him back down to where he was b4 increase. We go see the Dr we r left with. I tell her what happened n why I decided to use old dosage and WHY PLUS I GOT NO TELL YA NO ANSWERS N I HAD CALLED IN TOTAL OVER 2 MONTHS. TOLD when he went back to old dose the amount of seizures decreases. This woman said not one WORD. Not, no, I want him on this dose and thus is why. With no answer I assumed she agreed. I never checked his bottles for dosage until recently! So, he is being increased gradually to what she prescribed. If he has increases, I will call 911. I also asked for new tests. It has been since age 16 since an REG. HIS HEAD HAS HIT HARD FLOOR, CONCRETE, I CAN'T COUNT THE TIMES AS NO AURA. SHE WOULD NOT ORDER EVEN AN MRI! THESE ARE BEZT DRS WE HAVE AROUND HERE. HE NOW JUST HAS MEDICAID. I DO NOT KNOW WHAT TO DO.

I dont have epilepsy but I do

Submitted by Perripump on Sat, 2020-01-11 - 16:29
I dont have epilepsy but I do have migraines and I could stand to lose 20 lbs. I took 1 pill 100 mg of Topiramate just last night 1-10-2020. My vision is blurry, my room is spinning and it actually promoted my migraine an excruciating one at that. This medication is awful. Im afraid to walk to to the restroom,  I'm delusional and disoriented. I dont trust my own thoughts today or this cloudy vision. So Im definitely staying out of the car. I'll never take another pill and all I want to know is how long does it take to wear off bcus I have to return to wk Monday?

Hi, I just started taking

Submitted by jredinger31@gmail.com on Mon, 2020-03-23 - 15:56
Hi, I just started taking Topamax two weeks ago for migraines.  I am only on 100mg right now.  dr. want me to work up to 200 by next week.  I was on a pretty high dose of another drug that worked for migraines but made me gain 50 pounds and gave me terrible acne and I can't go in the sun. I am experiencing all of the side effects that you all are, and am wondering when and if they go away?  Do you ever feel normal again?  is it worth it?

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