Community Forum Archive
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Ethosuximide treatment
Tue, 01/06/2009 - 18:24I am writing hoping to find out a bit more about the treatment of Ethosuximide. My 7 year old Son was diagnosed 1 month ago with Childhood Absence Seizures. His Neurologist started him on 250ml a day of Ethosuximide and after 1 week 250ml twice a day. He is on day 15 and my husband and I have seen a huge decrease in the amount of seizures he has a day but we are still noticing that he is still having them. They seem to last for just a split second and I have noticed that they occur when he is tired. Usually early in the morning or in the evening time. I told his Dr that he was still having them (less frequent) after the first week on medication and she said that was to be expected. So I guess my question is Ethosuximide suppose to stop seizures completely or just decrease the amount that you have a day. Or is it still too soon on the medicine to see a difference? Any answers on this subject will be greatly appreciated. Thank you!
ethosuximide 2 years gaps diet
Submitted by FaithN on Mon, 2018-03-26 - 03:29
Hi, my son just turned 5. He started with little stares as we tried other meds, his seizures started getting more severe and longer lasting.He has been on ethosuximide for 2 years. Nothing we tried for the 1st year stopped his seizures. We tried combining it with other meds with horrible results. He is currently down to 4 ml twice a day. We did add 1/2 a pill of depakote only at bedtime. We started the gaps diet almost a year ago. The doctors wanted us to do the ketogenic diet, but I felt strongly that gaps was the way to go. I am glad we did, otherwise we wouldnt have realized dairy was an issue, because you dont cut that out with ketogenic, same with nuts.1 month into the diet he started having grand mal seizures. The grand mal seizures were caused by us adding apples back into his diet. We stayed strictly on the gaps diet, not adding even the allowed dairy,nuts or fruit. We have not seen a seizure since last April. His eeg shows seizure activity still at night but not near as much as before the gaps diet. We did add a b6 vitamin. It had to be a special kind because he cant have sugars or fillers like brown rice. My son no longer has angry outbursts. He is talking and interacting. I continue to pray for all you parents and care takers. My son and I pray every night for the children/ people who are dealing with this every day. You are not alone. Every person is unique, I wish one thing would work for everyone! My hope is that someone can use the gaps diet, and it helps them.