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Briviact users out there?

Sat, 08/06/2016 - 09:03
Hello, I'm new to the forum, a post-craniotomy brain AVM / stroke survivor with uncontrolled partial seizures. Sometimes these are tonic/clonic. In the past year, my neurologist and I have tried several meds, resulting in Depakote for primary treatment. I have not had a good experience with meds at all, so was a bit timid about accepting the Rx supplement of Briviact. Just wondering if anyone out there has had any experienice with the drug. Any advice would be appreciated. Thanks in advance

Comments

My daughter has been on

Submitted by Marionhntr on Fri, 2018-02-23 - 11:43
My daughter has been on briviact 100mg twice a day. Has not stopped episodes. I believe the episodes are due to the increase of meds. Episodes seem more psychotic since meds 

I'm so happy to say that my

Submitted by horselady on Wed, 2018-05-02 - 12:24
I'm so happy to say that my copay is only $8!!!  Will start it today.

Hello to all that have

Submitted by dickkirkland on Sun, 2018-07-01 - 07:37
Hello to all that have responded with great feedback and their experience with Briviact. After what looks like 2+ years, I am revisiting this post. I have had a mixed experience with the drug which is now being used as monotherapy (my only AED). The neurological and epilepsy team have increased the med twice and I’m now at 400mg daily, with the dosage being taken 3 times a day, spreading the therapeutic benefits out for a longer length of time. I have a heavy cocktail of other meds, but this along with those seem to be helping still. My seizures were never caught on continuous EEG when in the hospital in what is called an epilepsy monitoring unit.However, they were recorded on video when they occurred and this helped eventually eliminate Aptiom from my regimen.Yes, the drug is expensive, but the company does have a coupon program which has lowered my copayments to 20.00 USD. I recommend pursuing this program!Good luck to everyone with their recoveries.While I suffer depression, most of this seems to be something related to my strokes from surgeries and facing what is my new normal.Thanks again to everyone for their input and experiences.Sincerely,Dick

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