Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Being new to Epilepsy...
Sat, 05/22/2004 - 23:15Topic: Medication Issues
Hi, my name is Stef and I'm 28. Since I'm new to the notion of having epilepsy and that I only started taking 300mg/day of DILANTIN a few days ago, I'm wondering this :Are all the stories on these forums the unfortunate stories? I mean, are there any success stories for people taking DILANTIN or other medication?I'm not going to let this disorder win, but I would like to know if there is light at the end of the tunnel. I only get a few seizure per month and they're always while sleeping.Anyway, just looking for some experienced input in this.Thanks,- Stef.
RE: Being new to Epilepsy...
Submitted by GKT on Tue, 2004-04-27 - 14:40
Stef - Good for you for having a positive attitude! In answer to your question about is there any good news with people with epilepsy ... let me tell you that those who are experiencing the good news (seizures under control due to medication) probably aren't reading the message board. They've moved on.Just be careful to take your meds every day (at the same time) and get enough rest. Your meds may have to be changed (in type or dose) until your blood tests, and activity level, show that they've found the right one and you're now under control.I've taken Dilantin for many years (400 mg one day, 500 the next). Remember to have them do a blood test that includes your Dilantin level (10 to 20 is normal, so ask so you'll be informed).Also, if it turns out you don't like your neurologist ... switch (I've had to do that). You'll do just fine. Hang in there!