The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

What is Epilepsy?

Thu, 03/12/2020 - 16:47
Hello, I just want to know what people have compared their experience of epilepsy with. Most people, especially those who don't know what it is, have no idea what to compare it to or how to explain it. My doctor compares it to an "Electrical Storm", which is pretty good but i don't even know if that explains it. What is the best way you have heard Epilepsy/Seizures explain to you or that you explain to others?

Comments

Thank you so much for your

Submitted by hpenny3 on Wed, 2020-03-18 - 16:30
Thank you so much for your answer! Sorry, i was a little unclear. I didn't mean I was actually explaining it to a 5 yr old. I was just looking for how to explain it in the most fundamental way as possible. To give context to why I am asking, it is because I am giving a speech to a crowd who most likely don't have epilepsy or it may not have affected them.I will not be there to teach them science or teach them anything about seizures. The point is to use my story and experiences with epilepsy as an example of how you can thrive and "live well" even though you may have a medical condition, problem, etc. in your life. Therefore I am looking to say something like. I have epilepsy, which is...., It is like a.... The best idea I came up with is to say it is like an electrical storm in your mind. But i was hoping someone had a better idea. PS. I am a motivational speaker.

In that case, you may just

Submitted by Patriotrehab on Thu, 2020-03-19 - 01:22
In that case, you may just want to tell them that epilepsy is a condition that affects the brain and makes you more likely to have seizures than others. However, I would start out by saying that you are 1 in 26...so that they know how common it actually is. Then, I would suggest that you use what the doctor says in this video from the Epilepsy Foundation to explain what a seizure is https://www.epilepsy.com/learn/about-epilepsy-basics/what-seizure. To minimize the risk of stigma, it’s probably important to say anything that the brain can do normally, the brain can do abnormally during a seizure. Because you’re using your personal experience to motivate others, this might be a time to explain a little about your seizure type or types while emphasizing that it’s different for others who have epilepsy and how you were affected and what you’ve learned. Best wishes!

Thank you so much for taking

Submitted by hpenny3 on Thu, 2020-03-19 - 14:31
Thank you so much for taking the time out to answer me!. You are the best!

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.