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Talking to family about newly diagnosed epilepsy

Fri, 12/07/2018 - 00:50
I'm 25 and have recently been diagnosed with focal aware seizures and secondary generalized seizures. I had my first grandmal seizure back in June, a week after telling my dad that I was thinking about talking to my doctor about getting checked for seizures (due to an increase in episodes of difficulty with speech and understanding speech/ metallic or rotting smells/ high frequency buzzing/jamais vu/ disorientation and memory lapse.) My neuro believes that I have been having these episodes since I was a child. My problem is that I have no idea how to talk or explain to my family about my epilepsy. I have had issues with anxiety, major depression and severe insomnia since I was a very young child (my neuro thinks this is partially due to my seizures) and i've never bothered discussing these seizure symptoms with my family prior; I thought it was just a normal experience because i've had it since early childhood and was told that it was due to my mental health. I'm not sure how to explain to my family after all these years that these little episodes aren't just a symptom of my mental health and that not all seizures look like tonic-clonics. Has anyone else had an experience even vaguely like this? It would be nice to know how others talked to family and friends after being diagnosed as an adult.

Comments

The question wasn't to

Submitted by tsw5 on Tue, 2018-12-11 - 03:08
The question wasn't to explain what epilepsy is. It's how to articulate that my previous diagnosis from childhood was incorrect and that those symptoms are part of my focal aware seizures.

But thank you for your advice

Submitted by tsw5 on Tue, 2018-12-11 - 03:12
But thank you for your advice

So I think I get it but just

Submitted by Jazz101 on Tue, 2018-12-11 - 18:36
So I think I get it but just to confirm. So what you are saying is that Epilepsy was never on your file as a diagnosis when back then; that they never factored in Epilepsy but were leaning more to a governing "mental issue."Do I get it now?

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