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PNES diagnosis- is it a joke?
Wed, 08/21/2019 - 06:43I did an overnight VEEG test at Yale in June, and didn't have any seizures. After I was there one night, the neurologist walks in with his entourage and in front of this crowd, tells me I've got a conversion disorder, and he can send in a psychiatrist. The guy was awful. So now I'm looking at research about PNES. The one thing they've worked on for the last two decades is how to disqualify PNES people from neurological care. Nothing about what it is or how to resolve it. I'm starting to think this is a joke diagnosis. When they send you to Psychiatry, modern medicine is putting you in the patient trashcan. Anybody else out there with PNES and thinks it's BS?
I was diagnosed with
Submitted by Zafiro on Mon, 2019-10-07 - 14:11
I was diagnosed with intractable right temporal lobe epilepsy after 7 years and 10 medication trials. When they were researching the feasibility of surgery I was in the seizure investigative unit for 30 days before they actually were able to capture the data they needed. They wanted four documented seizures but I was there for 7 days before the first seizure - it was a full on GTC and subsequently they recorded a couple focal unaware and a focal aware. One night is NOTHING!! You may want to find other professionals to talk to because I know I wasn't the only one that spent ridiculous numbers of days in the SIU before seizure occurrence.