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petit-mal to grand-mal????complex? WHAT IS IT
Wed, 11/17/2004 - 23:39Comments
RE: RE: RE: petit-mal to grand-mal????complex? WHAT IS IT
Submitted by mexican_fire on Mon, 2004-11-15 - 14:46
Here are some types of auras.
A sense of Deja vu, Jamais vu, ringing or buzzing in the ears that gets louder, hearing sounds that are not there (ranging from bells, to a clamour of human voices and everything and anything in between), smelling disgusting odors that are not there (gasoline, burning rubber, burning candy, electrical smell, poop, pee, peanuts, bananas and more) sometimes it can rarely be a pleasant smell such as a scent of perfume, feeling disoreineted, feeling larger or smalelr than mormal, experiencing, of perception like everything is revolving or tilting, sudden dilation of pupils, feeling light-headed, suffering from numbness in a part of the body, experiencing tremors in the arms, hands, feet, and legs, feeling a spreading warmth or chilliness, feeling as though the stomach is rising, heaving, or being pulled upwards in the abdomen, prickly or pins-and-needles feeling in hands or feet, feeling sudden emotions such as dread, fear, anger, rage, happiness, elation or euphoria that come out of the blue and don't match the current situation at hand, seeing patterns, colors, or lights in vision field, and suffering from sudden severe headaches, stomaches, or other unpleasant or usual physical sensations.
Here's more on the subject--People can hallucinate, taste abnormal things, have a sensation that is equivalant to bugs crawling on their skin, numbness or tingling in only one part of the body, nausea, sweating, flushed face, rapid heart rate, increased pulse, and increased BP.
Sometmies ones body temp goes up some during a major convulsive seizure.
Talking about the lobes in the brain and what they do during a seizure is interesting.
When someone with a damaged LEFT occipital lobe has a partial seizure the damage can cause paresis on the left side. Conversly it activates the left occipital lobe with an electric current which results in the person seeing those colored images or shapes that were previously discussed.
SPS are classified to the lobes of the brain, and each lobe that is effected would then ahve its own known set of wura or seizure sympotms, and some can really come close to relating to a nother lobe's seizures.
In TL seizures the simple partial seizure carries with it the feelings of fewr, vivid memories or flashbacks, intense deja vu, or jais ma vu.
IN frontal lobe seizure there may be un controlled jerking or on arm or leg, or the head and eyes may turn to one side (versive seizure), in Parietal lobe seizures, the patient experiences tingling down one side of the body, and in Occipital lobe seizure the patient experinces the flashing lights in one-half the vision field.
Most partial seizures in the temporal lobe start with a blank stare as they progress, and some people will just stare and others will, as my mom likes to say about me, "perform well".
IF you need more questions answered, I think I can help you, because I worked on a neuro floor that had tons of people with epilepsy. There was no EMU where I worked, so the neuro floor got them all.
I also was an EMT for 4 years and was in the ER working with those neuros as well.
And I have tons of stuff on epilepsy at home, here.
I have E myself, and was having auras and weird twiching and all kinds of stuff, and like you, even though I knew I shoud go, I kept putting it off, and eventually I did go, and got put on a high dose of Tegretol, and didn't get a neuro until I moved here 2 years ago, and he did all the testing--EEGs (4), MRIs (2), CTs (1), PET scan (1), and VEEG (1).
The head scans were normal, but the EEGs were not, and neither was the 9 day telemetry monitoring.
So, you really need to get it looked at and into, or it will only get worse. Mine has been around since I was a small child, and no one figured it out, so it was never treated, and now it will never go away, it has become a syndrome that is intractible to most meds, meaning it is resistant, and I have to live with it forever.
The longer you go without treatment, the harder it sill be to get it under control.
I have been there, adn am currently trying to do it, but am getting nowhere.
PLease talk to your doc to get a referral to a neuro, but better yet, I see an epileptologist at an epilepsy clinic at a MAJOR hospital where I live, and he really knows what he is doing, is caring compassionate, wants to hear me tell him about what goes on, my symptoms etc all that. He doesn't drag me through the pharmacy like some neuros and epis do, he waits for 3 or more months to see how I do on, with and taking the drug or drugs in my case, becasue I take two AEDs at high doses etc. He does NOT EVER switch me from one drug to another without firts talking to me about it. He almost increased my Depakote more, but after we talked, he decided not to. I don't want to become toxic again, and for the most part I can live with the control it HAS given me. So it got left alone.
Nancy
Here are some types of auras.
A sense of Deja vu, Jamais vu, ringing or buzzing in the ears that gets louder, hearing sounds that are not there (ranging from bells, to a clamour of human voices and everything and anything in between), smelling disgusting odors that are not there (gasoline, burning rubber, burning candy, electrical smell, poop, pee, peanuts, bananas and more) sometimes it can rarely be a pleasant smell such as a scent of perfume, feeling disoreineted, feeling larger or smalelr than mormal, experiencing, of perception like everything is revolving or tilting, sudden dilation of pupils, feeling light-headed, suffering from numbness in a part of the body, experiencing tremors in the arms, hands, feet, and legs, feeling a spreading warmth or chilliness, feeling as though the stomach is rising, heaving, or being pulled upwards in the abdomen, prickly or pins-and-needles feeling in hands or feet, feeling sudden emotions such as dread, fear, anger, rage, happiness, elation or euphoria that come out of the blue and don't match the current situation at hand, seeing patterns, colors, or lights in vision field, and suffering from sudden severe headaches, stomaches, or other unpleasant or usual physical sensations.
Here's more on the subject--People can hallucinate, taste abnormal things, have a sensation that is equivalant to bugs crawling on their skin, numbness or tingling in only one part of the body, nausea, sweating, flushed face, rapid heart rate, increased pulse, and increased BP.
Sometmies ones body temp goes up some during a major convulsive seizure.
Talking about the lobes in the brain and what they do during a seizure is interesting.
When someone with a damaged LEFT occipital lobe has a partial seizure the damage can cause paresis on the left side. Conversly it activates the left occipital lobe with an electric current which results in the person seeing those colored images or shapes that were previously discussed.
SPS are classified to the lobes of the brain, and each lobe that is effected would then ahve its own known set of wura or seizure sympotms, and some can really come close to relating to a nother lobe's seizures.
In TL seizures the simple partial seizure carries with it the feelings of fewr, vivid memories or flashbacks, intense deja vu, or jais ma vu.
IN frontal lobe seizure there may be un controlled jerking or on arm or leg, or the head and eyes may turn to one side (versive seizure), in Parietal lobe seizures, the patient experiences tingling down one side of the body, and in Occipital lobe seizure the patient experinces the flashing lights in one-half the vision field.
Most partial seizures in the temporal lobe start with a blank stare as they progress, and some people will just stare and others will, as my mom likes to say about me, "perform well".
IF you need more questions answered, I think I can help you, because I worked on a neuro floor that had tons of people with epilepsy. There was no EMU where I worked, so the neuro floor got them all.
I also was an EMT for 4 years and was in the ER working with those neuros as well.
And I have tons of stuff on epilepsy at home, here.
I have E myself, and was having auras and weird twiching and all kinds of stuff, and like you, even though I knew I shoud go, I kept putting it off, and eventually I did go, and got put on a high dose of Tegretol, and didn't get a neuro until I moved here 2 years ago, and he did all the testing--EEGs (4), MRIs (2), CTs (1), PET scan (1), and VEEG (1).
The head scans were normal, but the EEGs were not, and neither was the 9 day telemetry monitoring.
So, you really need to get it looked at and into, or it will only get worse. Mine has been around since I was a small child, and no one figured it out, so it was never treated, and now it will never go away, it has become a syndrome that is intractible to most meds, meaning it is resistant, and I have to live with it forever.
The longer you go without treatment, the harder it sill be to get it under control.
I have been there, adn am currently trying to do it, but am getting nowhere.
PLease talk to your doc to get a referral to a neuro, but better yet, I see an epileptologist at an epilepsy clinic at a MAJOR hospital where I live, and he really knows what he is doing, is caring compassionate, wants to hear me tell him about what goes on, my symptoms etc all that. He doesn't drag me through the pharmacy like some neuros and epis do, he waits for 3 or more months to see how I do on, with and taking the drug or drugs in my case, becasue I take two AEDs at high doses etc. He does NOT EVER switch me from one drug to another without firts talking to me about it. He almost increased my Depakote more, but after we talked, he decided not to. I don't want to become toxic again, and for the most part I can live with the control it HAS given me. So it got left alone.
Nancy
RE: RE: RE: RE: petit-mal to grand-mal????complex? WHAT IS IT
Submitted by beautimouslove on Mon, 2004-11-15 - 16:33
thanks for your reply and the information on the subject. it helps so much.
i called dr/s all day today. here is the problem. i can go to free clinic, but i have to go through a primary dr to get to the neuro. i also talked with a great woman in the ins department at a neuro, she explained that if i go see a dr now then my ins in jan will not cover this. so i am stuck. she did say that she can put me on a payment plan to help with the bills. but i have to have all the bells and whistles when i go. she made me an aptmt for thurs.
i wish i knew what to do. go now and risk not having ins cover me ever having seizures or wait until jan and go and pray that something bad does not happen until then. someone please give advice on this... i am confussed and depressed now more than ever.
thanks for your reply and the information on the subject. it helps so much.
i called dr/s all day today. here is the problem. i can go to free clinic, but i have to go through a primary dr to get to the neuro. i also talked with a great woman in the ins department at a neuro, she explained that if i go see a dr now then my ins in jan will not cover this. so i am stuck. she did say that she can put me on a payment plan to help with the bills. but i have to have all the bells and whistles when i go. she made me an aptmt for thurs.
i wish i knew what to do. go now and risk not having ins cover me ever having seizures or wait until jan and go and pray that something bad does not happen until then. someone please give advice on this... i am confussed and depressed now more than ever.
RE: RE: petit-mal to grand-mal????complex? WHAT IS IT
Submitted by beautimouslove on Sun, 2004-11-14 - 16:45
what meds are u on? i am going to write and research all meds before going to the dr. this site has helped with the difference in side effects that i would not know according to the mosby's drug guide for nurses.
you fight yours? wow, that is what i am doing, so if i do not fight it then i'll go out? i have so much fear about what is going on with me. i also do not want my nursing school to know what is going on b/c i feel they may kick me out... even though i feel i can take care of my clients if i am on meds. i go to school 3 days a week so i will drive to and from school and cllinicals. other than that, i agree, i will no drive anymore. i feel so helpless and out of control of myself! i know u must feel this way too.
a cool wet rag? or warm? how does it help you? i may try that. do you have headaches or nausea? i did notice that the day before the big (going out) seizure that i had nausea all night. does that happen? it that an aura? i am confussed about the aura thing. i know what happens to me before and after, like vision gets blurred and sound hurts my ears, nausea?, and headache... are these all auras or a starting of a seizure?
i am learning more about different types of seizures that may help me and others. i feel that these events in my life might be for a reason, so i am learning as much as i can and will work with people like you and me. God would not give us anything that we cannot handle, and i feel like GOD wants me to work in this field, first b/c i can be more compassionate and understanding. -sorry, just a thought.
i understand the tests, but an eeg does not always show a seizure... is that test done for the dr. to give meds????? i learn about eeg's and all i can say is maybe it will show and maybe it will not, either way the dr gives meds., right?
thank you so much for writing back, i know now that i am not going crazy,,,, you know with the brain tingle thing. thanks again.
jennifer
what meds are u on? i am going to write and research all meds before going to the dr. this site has helped with the difference in side effects that i would not know according to the mosby's drug guide for nurses.
you fight yours? wow, that is what i am doing, so if i do not fight it then i'll go out? i have so much fear about what is going on with me. i also do not want my nursing school to know what is going on b/c i feel they may kick me out... even though i feel i can take care of my clients if i am on meds. i go to school 3 days a week so i will drive to and from school and cllinicals. other than that, i agree, i will no drive anymore. i feel so helpless and out of control of myself! i know u must feel this way too.
a cool wet rag? or warm? how does it help you? i may try that. do you have headaches or nausea? i did notice that the day before the big (going out) seizure that i had nausea all night. does that happen? it that an aura? i am confussed about the aura thing. i know what happens to me before and after, like vision gets blurred and sound hurts my ears, nausea?, and headache... are these all auras or a starting of a seizure?
i am learning more about different types of seizures that may help me and others. i feel that these events in my life might be for a reason, so i am learning as much as i can and will work with people like you and me. God would not give us anything that we cannot handle, and i feel like GOD wants me to work in this field, first b/c i can be more compassionate and understanding. -sorry, just a thought.
i understand the tests, but an eeg does not always show a seizure... is that test done for the dr. to give meds????? i learn about eeg's and all i can say is maybe it will show and maybe it will not, either way the dr gives meds., right?
thank you so much for writing back, i know now that i am not going crazy,,,, you know with the brain tingle thing. thanks again.
jennifer