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I am a 30 year old mother of a 3 year old and 1 year old. About a month ago I had a grand mal seizure that scared my children and husband to death. I've never had any medical issues and it just came out of no where while getting my children ready for bed. After many tests, mri, ct, 72 hour EEG it was determined I have general seizures with no apparent cause. I had 12 overnight during the 72 hour EEG. MD thinks this has been happening for a long time, we just never knew, since it is always when I'm sleeping. I've always had trouble sleeping, and am always tired- but also have two toddlers so thought nothing of it. He is titrating me up topiramate XR. My problem is, I cant drive right now. My husband works full time, and I had a weekend job as well as a part time job during the week as a home health nurse before all of this. My main job was driving to people's homes. I've had to quit my jobs as they would not hold my job for the 3 months I cant drive. We were barely making it financially as it is. I understand with most disability benefits it will not cover nocturnal seizures. Does anyone know ANYWHERE we can go to get help during these 3 months until I can get my life back on track and drive again. State of Texas requires I cant drive for 3 months after grand mal. Any advice, encouraging stories, words of wisdom appreciated. I am very overwhelmed by all of this and honestly dont know what to do from here, other than take my medication. Thank you all.

Comments

Thank you so much! I've been

Submitted by Lsteffey on Thu, 2019-10-03 - 21:44

Thank you so much! I've been so overwhelmed, I will look into God's resource!

Hi Lsteffey,Thanks for

Submitted by Anonymous on Fri, 2019-10-04 - 10:28

Hi Lsteffey,Thanks for sharing your story and we understand your concerns. Gianna has offered some wonderful advice & support! In many communities, the local Epilepsy Foundation offers programs that help people with epilepsy to find jobs. Find your local Epilepsy Office, here: epilepsy.com/localsupport Additionally, you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline A key part of managing epilepsy is knowing how it can affect person's independence and day-to-day needs. Visit our independent living pages and explore our employment section, to learn more about your legal rights,disability, reasonable accommodations and resources that are available to help: https://www.epilepsy.com/living-epilepsy/independent-living Additionally, you may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure. Use a journal or diary,to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfOne of the most important things to help you live with epilepsy is to find a support network. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns

 Hi Lsteffey,Thanks for sharing your story and we understand your concerns. Gianna has offered some wonderful advice & support! In many communities, the local Epilepsy Foundation offers programs that help people with epilepsy to find jobs. Find your local Epilepsy Office, here: epilepsy.com/localsupport Additionally, you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline  A key part of managing epilepsy is knowing how it can affect person's independence and day-to-day needs. Visit our independent living pages and explore our employment section, to learn more about your legal rights,disability, reasonable accommodations and resources that are available to help:  https://www.epilepsy.com/living-epilepsy/independent-living   Additionally, you may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure.  Use a journal or diary,to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you:  https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfOne of the most important things to help you live with epilepsy is to find a support network. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns 

Hi Lsteffey,Thanks for sharing your story and we understand your concerns. Gianna has offered some wonderful advice & support! In many communities, the local Epilepsy Foundation offers programs that help people with epilepsy to find jobs. Find your local Epilepsy Office, here: epilepsy.com/localsupport Additionally, you may contact our Epilepsy and Seizures 24/7 Helpline: 1-800-332-1000 contactus@efa.org, where a trained information specialist can connect you to resources, provide referrals and additional support.epilepsy.com/helpline A key part of managing epilepsy is knowing how it can affect person's independence and day-to-day needs. Visit our independent living pages and explore our employment section, to learn more about your legal rights,disability, reasonable accommodations and resources that are available to help: https://www.epilepsy.com/living-epilepsy/independent-living Additionally, you may want to consider creating a seizure response or action plan: https://www.epilepsy.com/living-epilepsy/toolbox/seizure-forms which is a helpful tool for those around you to understand what to do if you have a seizure. Use a journal or diary,to track your seizures, record your medical history, medications, side effects, moods, triggers, or other personal experiences. https://www.epilepsy.com/living-epilepsy/epilepsy-foundation-my-seizure-diary Learn how to live with seizures, potential risks and safety tips: https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe Review our seizure alert device factsheet with your doctor, to see if a seizure alert device is an option for you: https://www.epilepsy.com/sites/core/files/atoms/files/DAS100_Seizure_Alert_Devices_09-2018_FINAL2.pdfOne of the most important things to help you live with epilepsy is to find a support network. Sometimes it's helpful to connect with other people who live with epilepsy, to ask questions, share experiences, find & give support to each other. Learn more about your community support resources, here: https://www.epilepsy.com/learn/challenges-epilepsy/social-concerns