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mutation on the SCN3A gene
Mon, 05/28/2018 - 12:04hello,
My daughter (5 months old) has a mutation on the SCN3A gene. this mutation cause her to suffer from epilepsy and we haven't found yet the best treatment plan for her. to the best of my knowledgeת this is a very rare mutation, so i am trying to get in the touch with everyone who suffer from this mutation and to learn from his experience.
Does anyone else here have that mutation as well or know someone who have it?
Hello, Have you gotten an
Submitted by Sharon Strein on Tue, 2019-09-17 - 18:26
Hello, Have you gotten an answer yet to meet your needs? My now 7 year old daughter had incredible results with Zonegran. She also has the SCN3A gene mutation. I am seeing amazing research is coming out on this condition. Please message me if you ever want to chat