Migraines that act like seizures?

CDC funded page

Not a CDC funded Page

I had my first appointment with my new neurologist today. He has decided that I do NOT have a seizure disorder, but that I am far more likely to be suffering from migraines. I don't know what to say or do. He is an epileptologist and I was evaluated at the epilepsy centre. He said that if I am suffering from seizures, my symptoms would be the same for every episode. I don't know if I am convinced, but hey, he is the specialist. I think I want to give it all up and let the chips fall where they may. I don't think I care anymore. I'm too fed up to care.

Comments

Re: Migraines that act like seizures?

Submitted by heidi on Sun, 2007-04-01 - 20:57

Ugh. I know exactly what you mean, and from past posts, I remember that you and I have very similar symptoms, and have gone through similar diagnosis problems. Out of the blue my neuro decided that I AM having seizures, something he couldn't make his mind up about for over a year, and so I am starting a new AED, and scared as hell...but the reason I am responding to your post is to tell you to care, to keep fighting, and not to let this crazy process get you frustrated. Is this doctor putting you on meds for these "migraines?" Some of the same meds are used to treat both those and seizures...either way, I feel your pain. Hang in there.

Double Ugh I know exactly

Submitted by khbronn on Sun, 2007-04-01 - 21:43

Double Ugh I know exactly what you are experiencing-I've had the dx "A-typical complex or ocular migraines" for years But they changed about 6 years ago, Still the flashing lights, odd visual disturbances that I had for 10 years (since 17), but then afterward I started having slurred or loss of speech, numbness in face, arms, legs etc. First it was a T.I.A lets do a head CT and take her off birth control, Then it was oh no, just migraines (no headaches ever and didn't respond to migraine meds) Then it was blood work up the wazoo to check for everything else Then it was M.S. so give her an M.R.I. with contrast, nope, still migraines Then it was new neurologist for second opinion, only this time the "rookie neuro" says seizures but his superior says migraines GASP Then E.E.G which was sleep deprived but normal Then ship me off to another neurologist, YAY ME finally a decent one! 6 years later!!! dx seizures, even with another normal E.E.G. And Alas the treatment is working!! Anyways, my neurologist that I have now said the A-typical migraine, with or without headache and a partial seizure should be handled the same way (somewhat). Don't give up, How would the friggin' neurologist like to have your symptoms and just expect to put up with it. I got to the point where I didn't want anymore tests and didn't really care what the problem was, but I'm glad I kept trying because I knew it wasn't something that I should be experiencing and it was unacceptable for me to just "put up with it". You will find a treatment, It may just take awhile, keep your chin up and keep seeking a neurologist that will take time and listen instead of just reading tests and spurting out textbook diagnosises. You are paying them, if they aren't doing the job, find someone that will. Best of luck, I know how frusterating it can be! Just remember it's unacceptable for you to just put up with a neurological disorder, don't read too much into the diagnosis name, try to get the treatment. Heather

I had two documented grand

Submitted by Nikki28 on Thu, 2019-01-10 - 10:36

I had two documented grand mal seizures "tonic clonic" in January 1995. I was 12 years old. At 14 in 1996 I started getting headaches. I was diagnosed in 2008 with migraine with aura and 2014 with menstrual migraines. In 2013 and 2017 I passed out and started convulsing my bp skyrocketed to 230/120 in 2017. I usually shake with these "migraines" and find that Keppra IV or the pill helps. Most of the time I suffer in silence because most just refer me to a therapist. My therapist even says this is a not a case for him, but a neurologist. Weather changes are a trigger that's definitely not psychological. That's who they refer you to when they don't know the answers. Every body is different so not all treatments will work. Hoping for a cure one day.