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Medical Marijuana and Juvenile Myoclonic Epilepsy

Thu, 04/21/2016 - 21:23
Hello, I was diagnosed with Juvenile Myoclonic Epilepsy in my early teens and I am currently in my mid-twenties. I do smoke marijuana every night to help me sleep and I am in a state that allows medical marijuana. I have tonic clonic seizures and I am currently on Lamictal and Keppra. In the past, if I smoked marijuana that was too potent in THC, I became paranoid and sometimes induce mild seizures (twitches). Now, I have a medical marijuana card and I purchased marijuana with a high percentage of CBD and a low percentage of THC. Medical marijuana does not interact with the epilepsy but I would like to wean off of Keppra but I am a bit nervous to do so. I was wondering if anyone with JME has ever switched to medical marijuana and what was your story. Thanks

Comments

I'm actually really curious

Submitted by darkproject8 on Mon, 2018-11-19 - 20:24
I'm actually really curious about this myself! I was diagnosed with JME when I was 14, and started taking a low dosage of Depakote, however the weight gain I suffered from it just kept causing me to have to take more and more medication to remain stable. I'm currently taking 750mg twice a day (So 1500mg total) of the generic version of Depakote ER (Divalproex ER) to deal with my JME. It's causing my weight to get out of control and frankly I'm sick of it. I feel terrible all the time, and even now 1500mg isn't enough to keep my epilepsy in check, I have tonic clonic seizures throughout the day, and really bad headaches. I want to start lowering my medication, and maybe someday even get off of Divalproex and onto CBD or medical cannabis (Once I work at a job that is okay with me using it.) But I have no information about the safest way to do this, and my neurologist is no help on the matter either, she doesn't know anything about CBD and won't recommend it to me. If anyone has any information that could help me work on this shift, I'm going to be keeping this page favorited so I can check replies. I hope someone can help me, honestly the mood swings, the weight gain, and the damage it does to my liver, I'm unsure of how much longer I can keep doing this.

Hi Kay! My 18 year old was

Submitted by shughesd on Mon, 2019-07-15 - 05:00
Hi Kay! My 18 year old was just diagnosed with JME and I am really concerned about the meds, and feel strongly if she watches her triggers she can control it. But there are always those times that the sleep just gets cut short and being at university, she will drink from time to time. I'd like to try options, including CBD. Did you give it a try, and how have  you found it? Alternatively, if she did go on meds, what was the outcome? I feel like no one I have found (facebook support groups, etc) really considers options besides the ready meds the doctors jump to, so I am happy to see your post (despite being quite old)

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