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Keppra Rage

Mon, 09/20/2010 - 20:31
I am desperately seeking advice. I am engaged and my fiance has epilepsy. We have been together 5 years, and in the past couple of years since he started taking keppra, he has drastically changed. Most of the time, he is his normal self, the person I love, but he often gets extremely irritated and freaks out, yelling and cursing, not just at me, but at other people as well. He seems to have no ability to cope with the slightest issues that would roll of most people's back without so much as a second thought. Even worse is that every so often (once a month or so) he flies into these uncontrollable rages that absolutely terrify me. We will be having a normal conversation, both in great moods, and suddenly he is kicking walls and throwing things with a blank stare like he isn't even really there. It really scares me and this never happened before the keppra. He isn't honest with his doctor about the side effects because he is too afraid to get off keppra and try something else because he thinks it will trigger seizures during the transition. Does anybody else have experience with this? If so, has anything worked? I got him to try adding B6 vitamins but it made no change. I want to get him help because I know it isn't really "him" when he goes into these fits, but I am at my wits end...Please help!

Comments

Re: Keppra Rage

Submitted by Bharatt on Tue, 2011-02-15 - 04:25
Dear sgh, trust me it's not his fault. I had been on Keppra for around 18 months. It makes a person restless and sensitive. Most probably because it has a depressive effect. I've also experienced flickering vision because of it. Although you've done a wonderful job by adding B6, ask the neurologist if adding B12 will help. when I was on Keppra, I used to take Methylcobalamin (B12) injections which help fight depression, and used to feel great after taking one. The change was very obvious to my family. I was disappointed that I couldn't take them more than once or twice a week. Also, I suggest he should add more vegetables and seafood to his diet. Fish helps fight mood problems. Also, there is a breathing exercise (called 'Anulom-Vilom' Pranayam, a part of yoga), which is harmless and helps cure headaches and keep calm. However, if it's getting too much, tell his neurologist to change the medicine. It's better to find a more suitable medicine than to suffer for years. Good luck.

Re: Keppra Rage

Submitted by mscoulte on Tue, 2011-02-15 - 14:18

My husband started having tonic clonics in May 2010 at age 26. He tried Topamax which was a disaster and then we started on Keppra XR. It kept his seizures at bay but he became completely unbearable! He would realize when he would go into a complete rage but literally could not stop it from happening. He kicked the wall once and had an anxiety attack in our bedroom another night. I really didn't think I could live with him much longer and we were finally honest with our epileptologist about the side effects. He said, "Let me guess...your husband is being mean?"

 

Seizure medications can be lifelong and there is no reason to live like that when there are numerous other medications to try. We were so scared to switch, but he is now on generic Lamictal seizure free with zero side effects. 

My husband started having tonic clonics in May 2010 at age 26. He tried Topamax which was a disaster and then we started on Keppra XR. It kept his seizures at bay but he became completely unbearable! He would realize when he would go into a complete rage but literally could not stop it from happening. He kicked the wall once and had an anxiety attack in our bedroom another night. I really didn't think I could live with him much longer and we were finally honest with our epileptologist about the side effects. He said, "Let me guess...your husband is being mean?"

 

Seizure medications can be lifelong and there is no reason to live like that when there are numerous other medications to try. We were so scared to switch, but he is now on generic Lamictal seizure free with zero side effects. 

Re: Keppra Rage

Submitted by skolss on Tue, 2011-02-15 - 18:02
We have found that an add on therapy of medical maryuana really helps to control both keppra rage and partial onset.

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