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How I feel for a few days after a seizure. Can anyone relate??
Thu, 09/02/2004 - 14:31 I would love to know if anyone else feels this way.
I usually have seizures in my sleep. Before being on Dilantin I would have them while awake all of the time. I could feel it. An aura. I'm sure most who read this know what I mean, but it is so hard to describe.
Now if I have a seizure I feel horrible for up to a week. Certain sounds, pictures, standing up, concentrating.. all of this brings on that feeling. I hate it. There are times that I am almost certain that I am experiencing a simple partial seizure. I get that feeling, my jaw clenches, my neck tenses, the top half of my body shakes. Of course I can't breathe. It doesn't last long
It would help me to know if anyone else feels this bad for days after having a seizure.
At the moment I do not have a neurologist. There is a shortage of doctors where I live. I have gotten my medication through a clinic for the past year. I have also asked for a referral to a neurologist 2 times in the past 6 months. I plan to ask again tomorrow.
Thanks so much. Sorry for making this so long.
Comments
RE: RE: How I feel for a few days after a seizure. Can anyone r
Submitted by momof1 on Wed, 2004-08-25 - 09:08
I appreciate all of the replies. They have recently increased my medication.
That may be why I felt so horrible for days after a seizure.
Now I am exhausted, and in bed by 9 every night. I have been told that this is normal and will go away once my body adjusts.
I know that usually after a seizure I sleep for a day and then feel fine. Hopefully the increase in medication will help.
Thanks again.
I appreciate all of the replies. They have recently increased my medication.
That may be why I felt so horrible for days after a seizure.
Now I am exhausted, and in bed by 9 every night. I have been told that this is normal and will go away once my body adjusts.
I know that usually after a seizure I sleep for a day and then feel fine. Hopefully the increase in medication will help.
Thanks again.
RE: How I feel for a few days after a seizure. Can anyone relat
Submitted by mexican_fire on Thu, 2004-09-02 - 14:31
Hi momof1,
I don't have the same type of SPS as you do with all that motor activity, but after I have had a CPS, or GTCS I am not functioning for days.
WIth the CPS, I am in a complete and total fog for about 3 days afterwards. I feel like I have had the life sucked out of me, like my get up and go, has got up and left. I am exhausted, headachy, no appatite, pee alot, shaky, etc.
With the grand mal, I jsut sleep pretty much on and off for two days, and I can't function at all for up to a week after one of those.
IT is normal to feel that way. The seizure just made a mess of yoru brain, do you really expect to act right or feel right after one.
IT is like this. An electrical storm in your brain, and after it is over, your brain is still smoking from it, so you need to heal.
I feel funny when I go to stand up off my bed to go to the bathroom, too. I fall down getting there, because my balance is so messed up.
I wear my bike helmet when I get like that, and this weekend I am getting a crash helmet for epilepsy.
You are experieinceing things that are VERY normal.
Don't feel bad by it.
I can usually do quiet activities, though, like reading, and puzzle doing.
Nancy
Hi momof1,
I don't have the same type of SPS as you do with all that motor activity, but after I have had a CPS, or GTCS I am not functioning for days.
WIth the CPS, I am in a complete and total fog for about 3 days afterwards. I feel like I have had the life sucked out of me, like my get up and go, has got up and left. I am exhausted, headachy, no appatite, pee alot, shaky, etc.
With the grand mal, I jsut sleep pretty much on and off for two days, and I can't function at all for up to a week after one of those.
IT is normal to feel that way. The seizure just made a mess of yoru brain, do you really expect to act right or feel right after one.
IT is like this. An electrical storm in your brain, and after it is over, your brain is still smoking from it, so you need to heal.
I feel funny when I go to stand up off my bed to go to the bathroom, too. I fall down getting there, because my balance is so messed up.
I wear my bike helmet when I get like that, and this weekend I am getting a crash helmet for epilepsy.
You are experieinceing things that are VERY normal.
Don't feel bad by it.
I can usually do quiet activities, though, like reading, and puzzle doing.
Nancy
RE: How I feel for a few days after a seizure. Can anyone relat
Submitted by Marla on Wed, 2004-08-25 - 08:50
I have only had a few seizures in my life, and I know I am lucky for it. The last time I had a grand mal seizure was about six years ago, but I never want to have one again!!!
I ended up with the worst headache in the world after my seizures. worse than my migraines. I went to bed and slept for approximately 20 hours after the first one and six days later I had seizure #2 and slept for 23 hours. I agree, my brain ran a marathon, then came home and cleaned house, then went to an all night rave or something. ;) TIRED!
I have only had a few seizures in my life, and I know I am lucky for it. The last time I had a grand mal seizure was about six years ago, but I never want to have one again!!!
I ended up with the worst headache in the world after my seizures. worse than my migraines. I went to bed and slept for approximately 20 hours after the first one and six days later I had seizure #2 and slept for 23 hours. I agree, my brain ran a marathon, then came home and cleaned house, then went to an all night rave or something. ;) TIRED!