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How I feel for a few days after a seizure. Can anyone relate??
Thu, 09/02/2004 - 14:31 I would love to know if anyone else feels this way.
I usually have seizures in my sleep. Before being on Dilantin I would have them while awake all of the time. I could feel it. An aura. I'm sure most who read this know what I mean, but it is so hard to describe.
Now if I have a seizure I feel horrible for up to a week. Certain sounds, pictures, standing up, concentrating.. all of this brings on that feeling. I hate it. There are times that I am almost certain that I am experiencing a simple partial seizure. I get that feeling, my jaw clenches, my neck tenses, the top half of my body shakes. Of course I can't breathe. It doesn't last long
It would help me to know if anyone else feels this bad for days after having a seizure.
At the moment I do not have a neurologist. There is a shortage of doctors where I live. I have gotten my medication through a clinic for the past year. I have also asked for a referral to a neurologist 2 times in the past 6 months. I plan to ask again tomorrow.
Thanks so much. Sorry for making this so long.
Comments
RE: How I feel for a few days after a seizure. Can anyone relat
Submitted by momof1 on Fri, 2004-08-13 - 06:46
I have been having fun trying to find a neurologist.
I did a sleep study 3 years ago, but because I slept peacefully the doctor said that there is nothing wrong with me. I kind of gave up.
This site has helped quite a bit. I don't know the proper names, but I have read a great deal and it describes what I do. I know the one type is complex partial. Quite often it turns into a grand mal. (secondary generalized I think it is called)
The past few years I have had a lot to deal with and my health was not formost in my mind.
Thank you again.
RE: How I feel for a few days after a seizure. Can anyone relat
Submitted by seeker2 on Thu, 2004-08-12 - 22:38
Hi.
You shouldn't be feeling this bad,but you are.This was taken off the website here and it tells you what I would.
You need to see a neurologist and get yourself checked out regarding this as this article says to do.I hope that you do get the referral and this can be corrected and give you a better quality of life than right now.
Good luck with this and keep us posted.
'Seizures take many forms. Before your doctor can prescribe the right treatment, he or she must figure out which type (or types) you have. That's the purpose of all the tests discussed in the Diagnosis section—not just to tell whether you have epilepsy but also to tell what kind. '
There are so many kinds of seizures that neurologists who specialize in epilepsy are still updating their thinking about how to classify them. Usually, they classify seizures into two types, primary generalized seizures and partial seizures. The difference between these types is in how they begin:
Motor seizures:
These cause a change in muscle activity. For example, a person may have abnormal movements such as jerking of a finger or stiffening of the body. These movements may spread, either staying on one side of the body (opposite the affected area of the brain) or extending to both sides. Other examples are weakness, which can even affect speech, and coordinated actions such as laughter or automatic hand movements. The person may or may not be aware of these movements.
http://www.epilepsy.com/epilepsy/types_seizures.html
Hi.
You shouldn't be feeling this bad,but you are.This was taken off the website here and it tells you what I would.
You need to see a neurologist and get yourself checked out regarding this as this article says to do.I hope that you do get the referral and this can be corrected and give you a better quality of life than right now.
Good luck with this and keep us posted.
'Seizures take many forms. Before your doctor can prescribe the right treatment, he or she must figure out which type (or types) you have. That's the purpose of all the tests discussed in the Diagnosis section—not just to tell whether you have epilepsy but also to tell what kind. '
There are so many kinds of seizures that neurologists who specialize in epilepsy are still updating their thinking about how to classify them. Usually, they classify seizures into two types, primary generalized seizures and partial seizures. The difference between these types is in how they begin:
Motor seizures:
These cause a change in muscle activity. For example, a person may have abnormal movements such as jerking of a finger or stiffening of the body. These movements may spread, either staying on one side of the body (opposite the affected area of the brain) or extending to both sides. Other examples are weakness, which can even affect speech, and coordinated actions such as laughter or automatic hand movements. The person may or may not be aware of these movements.
http://www.epilepsy.com/epilepsy/types_seizures.html