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Housing Options for Uncontrolled Epilepsy

Sat, 03/02/2013 - 21:52
Topic: Living With Epilepsy - Adults

Hi All,

 

My brother is 25 years old and has had uncontrollable epilepsy since he was a child; we do no know how to help him prepare for an independent life. He has had 2 brain surguries and has gone through countless different types of medications. Nothing works.  His epilepsy used to be only petit mal, but over the past few years he has started falling more and more and hurting himself.

Right now, he lives with my parents, both who have to work full time and who will not be around forever. They (and I) are extremely worried about his future. His disability pension from the government is about $900/month (Canadian Dollars), which isn't much.

 

What are his options for housing? What sort of living arrangement would suit him best? We really have no idea how to even begin to find him appropriate housing. We want to find him housing because (a) he wants to move out and (b) so that when my parents pass away, he will already be living as independently from them as possible.

 

Please answer! We are desperate. 

Comments

We live in Akron. My 27 year

Submitted by micheleddc on Mon, 2018-09-10 - 18:02
We live in Akron. My 27 year old son lives with us. He has a progressive epilepsy, and has to rely heavily on a wheelchair now. He feels very isolated, and there never seems to be an appropriate housing option for him, other than our house. Did either of you find anything?

We live in Akron, and my son

Submitted by micheleddc on Mon, 2018-09-10 - 18:02
We live in Akron, and my son has a progressive epilepsy. Have you found anything? My 27 year old son lives with us, because it is the best arrangement so far. He feels very isolated from people his own age. 

My brother has Lennox Gastuat

Submitted by Dhayes54 on Thu, 2019-12-19 - 07:46
My brother has Lennox Gastuat Syndrom. A form of uncontrolled epilepsy. He is 59 years old and started having seizures at the age of 10. After my mother passed away, his sole caretaker, he needed help. I applied for waiver program here in Michigan and he qualified. They help people stay in there home with care, but my brother also has early onset dementia from the years of medication and uncontrolled seizures. So they helped me get him into an assisted living. It's not perfect but they do their best and he seems to like it.Hi Charlaine. My brother is 59, has lennox gastuat syndrome, a severe form of uncontrollable epilepsy. He also start having seizures at 10 and due to the years of medication and daily seizure activity it has cause some behavorial and dementia issues. After my mother passed away, I applied for waiver here in Michigan. This is a program that helps people stay in there homes with care, but sence my brother needed more than that, they helped get him into a assisted living home. It's not perfect but he is not alone and seems to like it.My brother has Lennox Gastuat Syndrom. A form of uncontrolled epilepsy. He is 59 years old and started having seizures at the age of 10. After my mother passed away, his sole caretaker, he needed help. I applied for waiver program here in Michigan and he qualified. They help people stay in there home with care, but my brother also has early onset dementia from the years of medication and uncontrolled seizures. So they helped me get him into an assisted living. It's not perfect but they do their best and he seems to like it.My brother has Lennox Gastuat Syndrom. A form of uncontrolled epilepsy. He is 59 years old and started having seizures at the age of 10. After my mother passed away, his sole caretaker, he needed help. I applied for waiver program here in Michigan and he qualified. They help people stay in there home with care, but my brother also has early onset dementia from the years of medication and uncontrolled seizures. So they helped me get him into an assisted living. It's not perfect but they do their best and he seems to like it.My brother has Lennox Gastuat Syndrom. A form of uncontrolled epilepsy. He is 59 years old and started having seizures at the age of 10. After my mother passed away, his sole caretaker, he needed help. I applied for waiver program here in Michigan and he qualified. They help people stay in there home with care, but my brother also has early onset dementia from the years of medication and uncontrolled seizures. So they helped me get him into an assisted living. It's not perfect but they do their best and he seems to like it.

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