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Fed Up!
Wed, 12/22/2004 - 14:14I have reached the end of my rope. These seizures are wrecking my life. Doctors have no answers. I am afraid to leave my home on my own. I have been informed by the Dean at my college that the only way I may return for Spring semester is if I have an aide with me at all times. This stinks. At 37 I am too old for a baby sitter. Anyone else facing similar issues?
Jessica
Comments
RE: RE: Fed Up!
Submitted by jbo0402 on Mon, 2004-12-20 - 19:00
Belinda-
I refuse to give up hope in finding control for this in some form. I have been trying for a long time to sort this out. I was reminded yesterday by my mother about the "staring spells" I used to have when I was a teenager. I guess the problem has been around for a very long time.
I am looking for information about training a seizure alert dog. I have a dog, about 10 Months old that alerts to my seizures before they happen. I know that if I am aware that one is coming ativan has a good chance for stopping it. If I can Buster trained and certified then he will be a big help.
Jessica
Belinda-
I refuse to give up hope in finding control for this in some form. I have been trying for a long time to sort this out. I was reminded yesterday by my mother about the "staring spells" I used to have when I was a teenager. I guess the problem has been around for a very long time.
I am looking for information about training a seizure alert dog. I have a dog, about 10 Months old that alerts to my seizures before they happen. I know that if I am aware that one is coming ativan has a good chance for stopping it. If I can Buster trained and certified then he will be a big help.
Jessica
RE: Fed Up!
Submitted by Belinda on Sun, 2004-12-19 - 19:54
Jessicca,I've had had E 41 years.Been through 18 drugs some drugs 2 and 3 times.I'me had brain surgery and I now have the VNS.I have intractable seizures knowone operate on me again with a ten foot pole.I always refused to let any else win out.I wont stay at home because I might have a seizure if it happens ithappens.I've broken my nose busted my head open open as many times as I've been alive.Both both collar bones.Had a lot more accident.Not everyone is controllable. Belinda