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Epilepsy/Meds are Ruining my LIFE!!!!

Mon, 03/16/2009 - 21:21
Hi, I am 20 years old and I have had epilepsy for the last 4 1/2 years. I just got an MRI and my brain scans are off the chart. Apparently I am having mini-seizures in my brain. The most recent drug that I was on was Topomax. This drug literally made me stupid!. I couldn't concentrate, I couldn't speak correctly, etc....it was terrible....Now I am switching to Keppra, because Topomax wasn't controlling my seizures fully. BUT! Keppra is making me tired. I have no energy. I am a 20 year old college student. I need all the energy I have. At this rate I am going to fail out of school because of what these drugs are doing to me. I made it through freshman year because my classes where easy, but sophmore year is just too hard, with all this medical BULLSHIT! My doctor says that my concentration issues could be a result of my mini seizures in my brain. I'm considering taking a leave from college so I can get my health together, but they say that finding the right meds for you is a trial and error process that could take "awhile". I'm dying here. It sucks when you look in the mirror and you see your potential, but are not able to live it because of these god damn meds. Can anyone relate to this??????? It's driving me crazy. (btw I have had 4 seizures in my life. 2 in highschool and 2 in college) Also, the worst part about this is my parents just think I'm being lazy and I am not "trying hard enough".....Most of the time Ill be thinking one thing, but not be able to fluently vocally express it, because I'm so doped out on these psycoactive drugs. Can anyone relate here. I'm really downward spiraling.

Comments

Re: Epilepsy/Meds are Ruining my LIFE!!!!

Submitted by seizethemoments on Mon, 2010-11-15 - 21:27

Epilepsy does not have to take away what you want from life.  You can do it, but one of my biggest regrets is NOT taking time off school sooner.  I had seizures for almost a year while in school, and wasn't sure what they were.  I have had a long journey with different doctors that led me here.

I was in school studying pre-med and wasn't remembering much and was exhausted all the time.  I started "passing out" in the mornings and missed school some days.  I also am a single mother, so after a long period of denial that there was a problem, I put what energy I had into taking care of myself and my child. 

I have lost a lot...my scholarship, grants, etc. because I made a medical withdrawal.  I had too much on my plate and school was the only thing I had left to give up.  I miss it sooo much and cannot wait until I get back into it!  If you can stay in school and give up something else, then please do.  If you have to take time off to take care of YOU, then you aren't alone!

Follow the path that will make you happiest.

Epilepsy does not have to take away what you want from life.  You can do it, but one of my biggest regrets is NOT taking time off school sooner.  I had seizures for almost a year while in school, and wasn't sure what they were.  I have had a long journey with different doctors that led me here.

I was in school studying pre-med and wasn't remembering much and was exhausted all the time.  I started "passing out" in the mornings and missed school some days.  I also am a single mother, so after a long period of denial that there was a problem, I put what energy I had into taking care of myself and my child. 

I have lost a lot...my scholarship, grants, etc. because I made a medical withdrawal.  I had too much on my plate and school was the only thing I had left to give up.  I miss it sooo much and cannot wait until I get back into it!  If you can stay in school and give up something else, then please do.  If you have to take time off to take care of YOU, then you aren't alone!

Follow the path that will make you happiest.

in the same boat. the drugs

Submitted by tundratrekker on Mon, 2018-04-09 - 15:19
in the same boat. the drugs the hospital doses you with, there is always an after effect and before long, you can't actually live without taking that crap. The disorder fucks life up, the medication does as well. Life gets totalled. 

It’s so hard to go through a

Submitted by Ivy98 on Thu, 2019-09-26 - 16:14
It’s so hard to go through a whole year without a seizure 

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