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Embarrassed
Wed, 12/25/2019 - 10:39Hello,
This is hard for me to write about but I am in desperate need of help. I have seizures and when I come out of seizures (when I am still unconscious) I sometimes say and do inappropriate things. I don't know what, but my family has hinted at some wild things I've said and tried to do. It is deeply, deeply, deeply humiliating for me and makes me feel like the worst kind of person. My family has assured me that my brain just "short circuits" and they know that's not really me. Does anyone understand? This is such a shameful burden to carry. I don't want to go into "what" I say or do because to be honest, I don't totally know and I just assume the worst. Any help or advice would be so great. Thank you all.
Comments
Dude, so do I. My brain is
Submitted by Misjoey101 on Fri, 2020-01-24 - 17:37
Dude, so do I. My brain is just in a drunk state. You'd think a six year-old would worry about an ambulance, but the thing that comes out is "What about my caramel apple?" Or in college, the first words were "Am I wearing a bra?". I never remember but people around me are telling me "Do you remember telling/asking the paramedic _________?" Nope. Never do.
Hi,1st can I say you have
Submitted by CraigMcW1985 on Sat, 2019-12-28 - 01:02
Hi,1st can I say you have nothing to be ashamed of.I can understand what you are going through a little but i think what I have realised is that everyone deals with this different and there are so many types of seizures. I was 30 when I had my 1st seizure my wife came home and found me on bathroom floor out cold and in a strange position she knew I had had a seizure as she works for the health service and noticed I had wet myself and had bit my tongue. When I eventually came round I was apparently very abusive towards my wife and ambulance staff. It was that bad they nearly called the police but my mother said not to do that as things will only get inflamed. I was then rushed to hospital and luckily it was when i got there i went into status epilepticus for 30 mins and was placed in coma for 3 days. Ever since i came round and found out what happened it has been an up and down battle I lost my licence and had to stop working as I have just kept having seizures both absence and Tonic clonic. About 16 months ago i went to see a physiologist as like yourself i was so embarrassed and down. When I was there it was pointed out to me i was embarrassed because I had struggled to open up to people about what i went and was still going through so even down to my sons school. After a while i tried to change things and started opening up to people and telling them what its really like and what I have found is most people are shocked but just want to help especially loved ones. My son developed alapeacha after seeing me in a few seizures then we took him on an ambulance course and tried to normalise things as much as we could now he understands a little better. The big key is education but more importantly please don't beat yourself up the seizures do that enough , try find someone to talk to. If not i am always here. Take Care Craig