1-2 Second Seizures? Temporal Lobe Epilepsy

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One year ago, I was diagnosed with Temporal Lobe Epilepsy. Prior to starting Lamictal (200mg) I experienced deja-vu / sense of familiarity / dual consciousness episodes which lasted between 3-6 minutes. They were followed by foggy / memory and cognition deficiencies that would last a few hours. My question. Since starting Lamictal, these episodes have been kept under control, but recently (after engaging with psychedelics) I have started experiencing brief glimpses of these episodes. They only last 1-2 seconds. I get the initial sense of it coming on, the familiar scene getting ready to play itself out, but then it's gone. Has anyone else experienced such short episodes? I am wondering how concerned I should be. My guess is the longer the duration, the more impact it will have on my brain functioning. I would love to hear anyone's thoughts or experiences.

Comments

I've had temporal lobe

Submitted by birdman on Fri, 2020-05-22 - 21:48

I've had temporal lobe epilepsy all my life and the seizures have changed throughout. I had "funny feelings" as a child where I had the sour smell and taste with the sense I had been in the same place before. Later these included loss of awareness and then in my teens and early twenties I had generalized seizures or "grand mals". During the mid 1990's I especially noticed real short, and faint spells which I wasn't sure were seizures. I didn't see them as a threat, and medications didn't work so I left them go. It wasn't worth trying to fight them with more pills. And I wondered maybe they weren't seizures; maybe it was my anxiety.Twenty years later I was having more of the focal seizures with impaired awareness. I tried a few more new medications but I couldn't handle them. I waited for Responsive Nerve Stimulation (RNS) to be approved. Finally last summer I got the RNS unit implanted. I was mostly looking forward to better seizure control but the treatment has provided me with some great answers. RNS automatically records seizures but the patient is encouraged to use a magnet to mark the recording where seizures are experienced, or just when I want to discuss any suspected sensation with my doctor. I've noticed many of the short, faint spells and I used the magnet to make note of these. I didn't think these sensations would show in the RNS recording and I was sure my doctor would think I was over-anxious. But NO! At my last visit in December my doctor confirmed he had recorded short seizures all the times that I used the magnet. RNS hasn't stopped the seizures, and it is much too early to expect full control. There are many options in settings and the therapy can take years to show improvement. But just having the seizures confirmed has been a great support.If I had the short seizures and I did not have RNS I still wouldn't be to concerned to get urgent treatment for them. But they are a warning that the seizures are still there and these can change and get worse. I'd say you need to keep considering all your options. Keep track of the short seizures. This is valuable information.

I've had temporal lobe epilepsy all my life and the seizures have changed throughout.  I had "funny feelings" as a child where I had the sour smell and taste with the sense I had been in the same place before.  Later these included loss of awareness and then in my teens and early twenties I had generalized seizures or "grand mals".  During the mid 1990's I especially noticed real short, and faint spells which I wasn't sure were seizures.  I didn't see them as a threat, and medications didn't work so I left them go.  It wasn't worth trying to fight them with more pills.  And I wondered maybe they weren't seizures; maybe it was my anxiety.Twenty years later I was having more of the focal seizures with impaired awareness.  I tried a few more new medications but I couldn't handle them.  I waited for Responsive Nerve Stimulation (RNS) to be approved.  Finally last summer I got the RNS unit implanted.  I was mostly looking forward to better seizure control but the treatment has provided me with some great answers.  RNS automatically records seizures but the patient is encouraged to use a magnet to mark the recording where seizures are experienced, or just when I want to discuss any suspected sensation with my doctor.  I've noticed many of the short, faint spells and I used the magnet to make note of these.  I didn't think these sensations would show in the RNS recording and I was sure my doctor would think I was over-anxious.  But NO!  At my last visit in December my doctor confirmed he had recorded short seizures all the times that I used the magnet.  RNS hasn't stopped the seizures, and it is much too early to expect full control.  There are many options in settings and the therapy can take years to show improvement.  But just having the seizures confirmed has been a great support.If I had the short seizures and I did not have RNS I still wouldn't be to concerned to get urgent treatment for them.  But they are a warning that the seizures are still there and these can change and get worse.  I'd say you need to keep considering all your options.  Keep track of the short seizures.  This is valuable information.  

I've had temporal lobe epilepsy all my life and the seizures have changed throughout. I had "funny feelings" as a child where I had the sour smell and taste with the sense I had been in the same place before. Later these included loss of awareness and then in my teens and early twenties I had generalized seizures or "grand mals". During the mid 1990's I especially noticed real short, and faint spells which I wasn't sure were seizures. I didn't see them as a threat, and medications didn't work so I left them go. It wasn't worth trying to fight them with more pills. And I wondered maybe they weren't seizures; maybe it was my anxiety.Twenty years later I was having more of the focal seizures with impaired awareness. I tried a few more new medications but I couldn't handle them. I waited for Responsive Nerve Stimulation (RNS) to be approved. Finally last summer I got the RNS unit implanted. I was mostly looking forward to better seizure control but the treatment has provided me with some great answers. RNS automatically records seizures but the patient is encouraged to use a magnet to mark the recording where seizures are experienced, or just when I want to discuss any suspected sensation with my doctor. I've noticed many of the short, faint spells and I used the magnet to make note of these. I didn't think these sensations would show in the RNS recording and I was sure my doctor would think I was over-anxious. But NO! At my last visit in December my doctor confirmed he had recorded short seizures all the times that I used the magnet. RNS hasn't stopped the seizures, and it is much too early to expect full control. There are many options in settings and the therapy can take years to show improvement. But just having the seizures confirmed has been a great support.If I had the short seizures and I did not have RNS I still wouldn't be to concerned to get urgent treatment for them. But they are a warning that the seizures are still there and these can change and get worse. I'd say you need to keep considering all your options. Keep track of the short seizures. This is valuable information.

Temporal Lobe Epilepsy -

Submitted by irangel on Mon, 2020-05-25 - 22:27

Temporal Lobe Epilepsy - Epilepsy is idiopathic, so please take my words with a grain of salt.....Please educate yourself about hypercalcemia and how 'doctors are now learning' about those with the illness will see evidence that their body will deposit calcium in their cordial arteries....and have no evidence in their kidneys, liver nor pancreas. It

Ooops! I hit the wrong key

Submitted by irangel on Mon, 2020-05-25 - 22:39

Ooops! I hit the wrong key on my keyboard....Long story short, being an epileptic, you must find the 'trigger points'.....unless you want to remain on prescription drugs for the rest of your life. Here are my 'trigger points' in chronological order from toddler to being 55 years old as I am today: milk, mortar mix, latex paint, nitrile gloves, calcium intake surpassing FDA's recommended 20% daily value.....and the common denominator among everything I have listed is......CaCO3.Irma irma.rangel05@gmail.com