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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

What do you feel?

Sat, 12/24/2005 - 12:21
I am very sorry to ask, and I apologise if this is too personal. I would just like to ask what do you actually feel during a seizure. How do you know when you have a seizure - I hear that epileptics can smell rotten eggs, or burnt rubber. Are you concious during a seizure, and do you realise that you are having one. Thank you, from Amrou

Comments

I had a bad one yesterday and

Submitted by Stephenc421@gmail.com on Wed, 2018-10-17 - 10:35
I had a bad one yesterday and here's this one felt I like floated out of chair and slammed on the bed then I was stuck barley take a breath could not move first time I had a partial seziure really weird to me 

I have mine when I'm starting

Submitted by Hkowilson86 on Sun, 2018-09-02 - 01:12
I have mine when I'm starting to wake up. I'm usually aware I'm having a seizure, but there have been a few I dont remember and just wake up several times afterwards in a panic and I dont know why at the time. During the ones I'm aware of I typically enter a dream like state where I've thought I've been abducted by aliens(was watching a lot of X-Files at that time), that theres a doctor talking to someone who's taking care of me about my seizures and dosage, I've walked down a dark cavernous hallway with a strong female person who tells me I know what's going on and reassures me, and some times theres no dream. I get a high pitch ringing as I'm finishing my seizure and finally it stops and my limbs get a weird uncomfortable tingle. I'm always out of breath, and I used to cry all the time. Now I understand what's happening, my husband is almost always there. I always need to pee after, but cant walk for about half hour. Talking is difficult, no coordination, cant roll over in bed. It's hard, but its mine so I need to deal with it. I'm very grateful for my family, friends and coworkers who support me to the end. 

What you experienced sounds

Submitted by Renae777 on Tue, 2019-03-05 - 06:45
What you experienced sounds just like sleep paralysis. People can get a few episodes in their lifetime but myself I have narcolepsy so I have experienced a lot. Look it up, I hope it gives you more clarity. 

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