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JME and pregnancy

Fri, 04/09/2004 - 12:33
I am a 25 year old woman with JME. Can any mothers can tell me about the types of medications they have taken while pregnant? Any discussion I have with my husband about having children is complicated with speculation about whether I would be able to adapt to the difficult lifestyle of first-time parents. My main concern about having children is that I can't figure how I would deal with the sleep-deprivation that occurs during the first year (and past that) of babyhood. My husband is very sensitive and will probably do more than his fair share of getting up at night but I know that after two days of having interrupted sleep I would have a seizure. I don't plan on having children for another 5 or 6 years but these are concerns that I think of often because I don't know any epileptic women who have dealt with these problems themselves. What's been your experience as a new sleep deprived mother? I have adapted my life to being an epileptic but I can't imagine how I would be able to do the same faced with the challenges of early motherhood. My neurologist has explained to me that I would be taken off Depakote and put on another drug that is safe to take during pregnancy but didn't go into details about what that drug would be or how it would differ from Depakote (which I have had good success with). I have a mild form of JME and have only had one grand mal seizure, Depakote and a strict sleeping schedule seems to keep the seizures away.Do any mothers have any information about epilepsy medication and breastfeeding? Are there medications that are safe to take while breastfeeding and has anyone had any personal experiences with these medications while breastfeeding?Thank you for your help!

Comments

RE: JME and pregnancy

Submitted by mommy2kyra on Tue, 2004-04-06 - 15:53
Hi tibet,Thanks for the correction, I appreciate the explanation :)Heather

RE: RE: JME and pregnancy

Submitted by mexican_fire on Fri, 2005-05-13 - 15:12

No, JME is not a acronym for Jacksonain Epilepsy.  It stands for Juvenile Myoclonic Epilepsy.

It produces Grand Mals, Myoclonics, and Absences.

I have JME, and TLE.

JME is genetic in my family, and one of my kids has Grand Mals and takes Dilantin for them.  The other child is non-epileptic so far.  My 3rd child is from my husband's proior marriage adn she is 13, Allison.  My oldest is, Gretchen is 10 and has had epilepsy for 3 years, and my other child, Brittani is 8.

Nancy  I was removed from Depakote and put on Dilantin.

 

 

No, JME is not a acronym for Jacksonain Epilepsy.  It stands for Juvenile Myoclonic Epilepsy.

It produces Grand Mals, Myoclonics, and Absences.

I have JME, and TLE.

JME is genetic in my family, and one of my kids has Grand Mals and takes Dilantin for them.  The other child is non-epileptic so far.  My 3rd child is from my husband's proior marriage adn she is 13, Allison.  My oldest is, Gretchen is 10 and has had epilepsy for 3 years, and my other child, Brittani is 8.

Nancy  I was removed from Depakote and put on Dilantin.

 

 

RE: JME and pregnancy

Submitted by seeker2 on Wed, 2004-04-07 - 12:22
Hi there.From a read of the link to EFA,and these other links,I hope that you find something else useful to you in your wish to start a family and,if nothing else you can read them with your husband and talk it over with him some more.Sounds like you have a great and understanding husband who understands and wants to help as much as he can.You could always share the sleep cycle of your new arrival between you,that way you both get sleep,and the baby will be fine,you as well will be less stressed about safety and hopefully not as tired as well.It would seem your neuro knows his stuff regarding the switch of med for you whilst you are considering starting your family and during your pregnancy.At least according to the reading I've done.Lamictal seems to be the choice of drug,in the switch from Dapakote that you are taking now, and a healthy diet and vitamins also seem to be highly on the list of 'Does',as well whilst pregnant. I hope that you go Ok on whatever drug your neuro advises for you,that all goes well and you do achieve your wish.http://www.emedicine.com/NEURO/topic416.htmhttp://www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?cmd=entry&id=606904http://www.epilepsyfoundation.org/forums/messageview.cfm?catid=4&threadid=19114There can be nothing better than starting and having a family,and you seem to both want that and are considering all your options regarding safety in doing so.

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