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The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Resources for VNS Therapy
Mon, 03/24/2008 - 22:46Hi everyone,
We had Dr. Steven Schachter join us this afternoon for a Question and Answer Chat on VNS Therapy. Here are a number of links to information on the site about VNS. I have also included a link to Cyberonics. Hope this helps!
Epi_help
http://my.epilepsy.com/epilepsy/vns
http://my.epilepsy.com/epilepsy/vns_what
http://my.epilepsy.com/epilepsy/vns_data
http://my.epilepsy.com/epilepsy/vns_other
http://my.epilepsy.com/epilepsy/vns_history
http://my.epilepsy.com/101/vns_therapy_101
http://my.epilepsy.com/epilepsy/travel_tips_vns_other_treatment
http://professionals.epilepsy.com/page/vagusnerve.html
http://www.vnstherapy.com/ (this takes you to Cyberonics, the company that makes the device)
Seizures and Teens: When medicines don’t work – Devices and Diet - http://my.epilepsy.com/pdfs/Except_parent_art9.pdf
Comments
Re: Resources for VNS Therapy
Submitted by Anonymous on Thu, 2008-03-27 - 00:00
Thanks for responding but I think some of your information is not correct. There are many alternative therapies, as well as new therapies being looked at. However, some of the therapies you list have not undergone the same type of scientific study. Any treatment, including alternative therapies, may have side effects. That's why it's important for people to do their homework and make sure they ask specific questions of their treatment team to hear the pros and cons of each option. With the VNS, while there may be safety concerns, as with any device, these are well known ahead of time and people should read the patient manual before getting the device implanted.
Epi_help
Thanks for responding but I think some of your information is not correct. There are many alternative therapies, as well as new therapies being looked at. However, some of the therapies you list have not undergone the same type of scientific study. Any treatment, including alternative therapies, may have side effects. That's why it's important for people to do their homework and make sure they ask specific questions of their treatment team to hear the pros and cons of each option. With the VNS, while there may be safety concerns, as with any device, these are well known ahead of time and people should read the patient manual before getting the device implanted.
Epi_help
Re: Resources for VNS Therapy
Submitted by bernardcwe on Thu, 2008-03-27 - 09:56
If you can show me where any information I posted is incorrect, I would be happy to correct it.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Check out my chart of alternative epilepsy treatments.
If you can show me where any information I posted is incorrect, I would be happy to correct it.
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Check out my chart of alternative epilepsy treatments.
Re: Resources for VNS Therapy
Submitted by banffgirl on Wed, 2008-03-26 - 22:27
herb,
you have no idea how much your wise words meant to me. i have felt i was the only one out here who could see what bernard was doing over the last year. i just finally had enough and had to speak my mind. since i have gotten my vns implant i have been taken off antidepressants that i was taking on and off for the last 30 years. so it definitely helped me there. i have notice a decrease in siezures. i was having 8-12 tonic clonic siezures a week, so to be completely uncontrolable to this, i am so greatful of my vns.
education is always important, but bernard gives misinformation. his anger towards me is probably due to the fact that i didnt agree with him and i called him on his misrepresentaion of himself. i myself am like you. i want people to know the truth, advocate towards proper knowledge. if you read my postings, you will see i am always wanting people to know about epilepsy. i wrote a forum on respecting your epilepsy. this one bernard would probably not like because it has something about not driving etc. when uncontroled.
you are welcome to go thru and read any of my postings as i try to give real info not bias info to others on this site.
God Bless you herb,
banffgirl
life is fragile, handle with prayer.
herb,
you have no idea how much your wise words meant to me. i have felt i was the only one out here who could see what bernard was doing over the last year. i just finally had enough and had to speak my mind. since i have gotten my vns implant i have been taken off antidepressants that i was taking on and off for the last 30 years. so it definitely helped me there. i have notice a decrease in siezures. i was having 8-12 tonic clonic siezures a week, so to be completely uncontrolable to this, i am so greatful of my vns.
education is always important, but bernard gives misinformation. his anger towards me is probably due to the fact that i didnt agree with him and i called him on his misrepresentaion of himself. i myself am like you. i want people to know the truth, advocate towards proper knowledge. if you read my postings, you will see i am always wanting people to know about epilepsy. i wrote a forum on respecting your epilepsy. this one bernard would probably not like because it has something about not driving etc. when uncontroled.
you are welcome to go thru and read any of my postings as i try to give real info not bias info to others on this site.
God Bless you herb,
banffgirl
life is fragile, handle with prayer.