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Epilepsy Journal: Insights & Strategies - Editorial Board Members Needed

Tue, 12/16/2008 - 11:08

Please consider serving as a member of the Editorial Board to review and select articles for the journal. Qualifications include skills with writing in English, and ability to critically review written material. Editorial Board members should have some area of expertise that would help to review submitted articles in various areas, for example, with the educational system, legal rights, psychology, employment issues, or other life experience that develops a useful perspective from which to review articles. Editorial Board members will be asked from time to time to contribute an article or comments on an article in their own words.

If you would like to be on the Editorial Board, please send an email with your qualifications to robin@epilepsytherapyproject.org. You can also respond to this forum to volunteer.

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Comments

Re: Epilepsy Journal: My Story - Editorial Board Members Needed

Submitted by Anonymous on Sun, 2008-12-21 - 07:06

Hi everyone...

Just want to add a plug to all my friend, and to those I have not yet met... You are a wonderful group of people with so much to share!  Some of you are great at writing and would be valuable contributors to this new journal part of the site. You may not know it yet, but consider giving it a try. Others are great at coming up with ideas, reading articles and offering very helpful insight and feedback. The editorial board would be great for you! Editorial board members don't have to be excellent in grammar and do the editing themselves. There is a medical writer who will do final editing.  The editorial board though needs to be able to read articles from the perspective of the person with epilepsy (or family member) and give feedback on whether article is right for the journal, or maybe the article is better suited for a different part of the site.

I know there are lots of talented people on the site who have asked how they can help. Here's one way! Don't worry - if you want to do this, it's not a lifetime committment.  We'll be rotating members so more people get to try it and there's not to much on any one person.

Let us know if you are interested. If it would help to have a time to chat about this and learn more about it, email me or write in here. I could set this up so people can come and ask questions to learn more about it!

Thanks for reading this and hope to hear from you soon!

Take care,

Epi_help

Resource Specialist

patty@epilepsytdp.org 

 

Epi_help Resource Specialist

Hi everyone...

Just want to add a plug to all my friend, and to those I have not yet met... You are a wonderful group of people with so much to share!  Some of you are great at writing and would be valuable contributors to this new journal part of the site. You may not know it yet, but consider giving it a try. Others are great at coming up with ideas, reading articles and offering very helpful insight and feedback. The editorial board would be great for you! Editorial board members don't have to be excellent in grammar and do the editing themselves. There is a medical writer who will do final editing.  The editorial board though needs to be able to read articles from the perspective of the person with epilepsy (or family member) and give feedback on whether article is right for the journal, or maybe the article is better suited for a different part of the site.

I know there are lots of talented people on the site who have asked how they can help. Here's one way! Don't worry - if you want to do this, it's not a lifetime committment.  We'll be rotating members so more people get to try it and there's not to much on any one person.

Let us know if you are interested. If it would help to have a time to chat about this and learn more about it, email me or write in here. I could set this up so people can come and ask questions to learn more about it!

Thanks for reading this and hope to hear from you soon!

Take care,

Epi_help

Resource Specialist

patty@epilepsytdp.org 

 

Epi_help Resource Specialist

Re: Epilepsy Journal: My Story - Editorial Board Members Needed

Submitted by tonialpha on Sun, 2009-01-04 - 20:25

Epi_help,

I would be interested.  I am a patient.  I worked in the field as a Neurodiagnostic Tech.  I have had experience on both sides of the story.  I am now an at home mom dealing w/ seizures and on a drug study now.  I also deal w/  not driving.   Familiar w/ broken limbs.  Know the importance of having a friend to talk to when things are going rotten!

 I have a VNS.  I have had 2 surgeries.  I worked at UCLA and now live on the East Coast and have a family member that works at the FDA.  I would love to be part of  your group!  I have a teenager and a pre-teen and dealt w/ the fear of pregnancy etc.   Dealt w/ status, multiple times, I could go on, including toxicity.  I like to hear what other people go thru it always helps me!

When I was at UCLA I worked in research in Neurology, specializing in drug studies, and diagnosis of seizures.

I went into dementia research my last 5 years, dealing w/ reviewing MRI's and CT comparisons w/ diagnosis of pre-dementia work-ups.  Our dept. wanted to verify via EEG and MRI or CT if  it w/ be a dementia in the future. We did a family work-up and we even did twins.  It was an interesting job.   I did a lot of library work in research of this.  We compared it w/ Psychology and Neurology.  We also worked w/ mini-mental states w/ patients yearly.  We compared the study after 3 years and noted that there was some interesting factors and my boss wrote many papers thanks to all of our work in the library, working w/ patients , giving the patients mini-mental states.  It really did help.  We noted the background of pre-Alzheimer had subtle slowing in the EEG.  The multi-infarct Dementia had MRI, and somes mini-mental states were  sometimes off.   In the 4th year we reviewed PET scans at one point which started to show abn.  on the Alheimer's. too in the posterior  portion of the brain. It showed other things too.  I found it quite interesting to be the quinea pig doing a little of everything.  

 The doctor trusted my work but unfortunately my pregnancy and seizures did not mix.

Noting the change recently I have been wanting to go back to work and this would be a good stepping stone for me.  I would like to start working on searching for things and helping people.  I am thinking of going back into a University location but it has been a while and this would be great for me, there is a lot going on and a lot of new medication being reviewed right now !  WOW!  Not like the old days, as my mom would say!

 

Thanks,

Toni

Epi_help,

I would be interested.  I am a patient.  I worked in the field as a Neurodiagnostic Tech.  I have had experience on both sides of the story.  I am now an at home mom dealing w/ seizures and on a drug study now.  I also deal w/  not driving.   Familiar w/ broken limbs.  Know the importance of having a friend to talk to when things are going rotten!

 I have a VNS.  I have had 2 surgeries.  I worked at UCLA and now live on the East Coast and have a family member that works at the FDA.  I would love to be part of  your group!  I have a teenager and a pre-teen and dealt w/ the fear of pregnancy etc.   Dealt w/ status, multiple times, I could go on, including toxicity.  I like to hear what other people go thru it always helps me!

When I was at UCLA I worked in research in Neurology, specializing in drug studies, and diagnosis of seizures.

I went into dementia research my last 5 years, dealing w/ reviewing MRI's and CT comparisons w/ diagnosis of pre-dementia work-ups.  Our dept. wanted to verify via EEG and MRI or CT if  it w/ be a dementia in the future. We did a family work-up and we even did twins.  It was an interesting job.   I did a lot of library work in research of this.  We compared it w/ Psychology and Neurology.  We also worked w/ mini-mental states w/ patients yearly.  We compared the study after 3 years and noted that there was some interesting factors and my boss wrote many papers thanks to all of our work in the library, working w/ patients , giving the patients mini-mental states.  It really did help.  We noted the background of pre-Alzheimer had subtle slowing in the EEG.  The multi-infarct Dementia had MRI, and somes mini-mental states were  sometimes off.   In the 4th year we reviewed PET scans at one point which started to show abn.  on the Alheimer's. too in the posterior  portion of the brain. It showed other things too.  I found it quite interesting to be the quinea pig doing a little of everything.  

 The doctor trusted my work but unfortunately my pregnancy and seizures did not mix.

Noting the change recently I have been wanting to go back to work and this would be a good stepping stone for me.  I would like to start working on searching for things and helping people.  I am thinking of going back into a University location but it has been a while and this would be great for me, there is a lot going on and a lot of new medication being reviewed right now !  WOW!  Not like the old days, as my mom would say!

 

Thanks,

Toni

Re: Epilepsy Journal: My Story - Editorial Board Members Needed

Submitted by robinowen on Mon, 2009-01-05 - 14:09

Thank-you for your offer of support on the new journal. If you are still interested in participating, please send me an email so that we can discuss further.

Robin Owen, Managing Editor, Epilepsy Journal: Insights and Strategies, robin@epilepsytherapyproject.org

Thank-you for your offer of support on the new journal. If you are still interested in participating, please send me an email so that we can discuss further.

Robin Owen, Managing Editor, Epilepsy Journal: Insights and Strategies, robin@epilepsytherapyproject.org

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