Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Is it all in my head?
Tue, 06/04/2019 - 19:32Hello:)
I have been having these episodes for a while now where I completely space out. Sometimes I'm aware of what's going on around me but everything seems unfamiliar and I feel like I'm watching everything through a bubble. I'll get a wave of an emotion like fear or love as if I'm high. When I'm in bed or sleeping my limbs will flap around but it feels like I'm controlling but not on purpose? I don't know. My memory has gotten really bad too, it kinda sucks, not really sure what to make of this.
Hi Azzy_pat, Thank you for
Submitted by Anonymous on Wed, 2019-06-05 - 08:51
Hi Azzy_pat, Thank you for sharing your experience. It’s important that you will follow-up with your healthcare providers to discuss these episodes you describe. https://www.epilepsy.com/sites/core/files/atoms/files/pg2L_HealthCareVisits_09-2018.pdf . For additional information on epilepsy and seizure safety please visit, https://www.epilepsy.com/learn/about-epilepsy-basics/what-seizure & https://www.epilepsy.com/learn/seizure-first-aid-and-safety/staying-safe/safety-while-sleepingIt is common for those living with epilepsy to have experience issues with their thinking and memory, learn more about those issues here, https://www.epilepsy.com/learn/challenges-epilepsy/thinking-and-memoryFor help finding a doctor specializing in epilepsy please visit, www.epilepsy.com/living-epilepsy/find-epilepsy-specialist ,or by visiting the National Association of Epilepsy Centers at, www.naec-epilepsy.org & https://www.epilepsy.com/living-epilepsy/find-epilepsy-specialist/find-epilepsy-center If you have additional questions, please email, contactus@efa.org , or call our 24/7 Helpline at, 800-332-1000, https://www.epilepsy.com/living-epilepsy/247-helpline, where a trained information specialist can assist in connecting you to resources, provide referrals and additional support.