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Can anyone please help if you have seen/experienced this type of seizure before?

Fri, 07/21/2017 - 11:20
Hi everyone, I am writing because me and my family are extremely frustrated and do not know how to cope with this. My mother had 2 tonic clonic generalised seizures last October and she was admitted and diagnosed with a brain tumour, she is 59 years old. She had surgery and the biopsy sadly said its glioblastoma. Since October, she has been on Levetiracetam (1000mg x3 daily) which is max dose I believe. Since then, she had few seizures tonic clonic while conscious, whihc caused her confusion and slurred speech but they were small jerks and did not last for more than few minutes. Two days ago, she started screaming (more like a moaning sound) in regular intermittent time intervals, while there were no jerking movements, no convulsions, no lack muscle tone (drops etc) just shouts with her eyes closed and seemed to be aware of her surroundings because when we were trying to do anything like touch her or talk to her or reassure she would start shouting louder in response or push or hands away from her, and afterwards she would seem rather clear minded, very able to communicate and understand and with quick responses. Initially we were all extremely unsettled because we had never seen such type of seizure before and it did not really look like a seizure. She would stop the screaming for few minutes and be conscious and responsive and then resume. This happened in total 6-7 times yesterday and we gave her 2 rectal diazepam which calmed her for a couple hours but then she would seem extremely anxious about getting another 'seizure'. We are beginning to suspect it might be psychogenic because it seems so strange that she is so well afterwards after so many episodes in such short time, while she is on 2 anti eppileptics (we added carbamazepine) and diazepam. We hope to get her to the hospital Monday but she is being very non compliant and does not explain what is going on, although she clearly seems to be conscious and the shouting does not seem involuntary as she claims. plEASE please I would really appreciate any input or help, has anyo ne witnessed or experienced such kind of actual epilepsy?

Comments

that's an unbelievably

Submitted by Amy Jo on Sat, 2017-07-22 - 06:43
that's an unbelievably difficult situation. I'm sorry that your family has to face that.many seizures do not seem like seizures and non epilepsy specialized docs can get things wrong about seizures so please don't assume these are not real seizures based on your observations. contact her doc's after hours line if there's something concerning (and this is very concerning). the legal issues abound, you don't need to be asking for the doc to break any rules to give them your observations. 

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