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EEG Neurofeedback or LENS Neurofeedback

Tue, 10/02/2007 - 08:56
Topic: Complementary Therapies
I am interested in hearing from anyone who has tried neurofeedback (either EEG or LENS types) and what your experience was like. My wife had a lot of success with EEG neurofeedback (eliminating multiple, daily absence seizures completely and semi-yearly TCs for 4 years). She also tried LENS neurofeedback later when her seizure activity changed post childbirth (long story), but she didn't get to finish it so her results were inconclusive with that one. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Check out my chart of alternative epilepsy treatments.

Comments

Re: EEG Neurofeedback or LENS Neurofeedback

Submitted by j4quick on Tue, 2011-02-22 - 22:26
I am going to start my son on neurofeedback in a few weeks.  I have high hopes we can gradually eliminate his meds, since a combination of Keppra and Trileptal are not keeping him completely seizure-free. 

Re: EEG Neurofeedback or LENS Neurofeedback

Submitted by Laurie Lamantia on Tue, 2011-03-22 - 11:33

Our son is 16, has failed 6 meds and has myoclonic absnece seizures.  Mornings are really rough for him, hard for his brain to Kick in.  We started neurofeedback 2 months ago.  We go 2 x per week.  The Dr. had a eeg done and sent it out for a brain map.Based on the findings she has changed his treatment a bit.  I know it will take a while to see results.  His brain has been doing it's own thing for years and it will take time to correct.  But he has been really tired after each session.  Yesterday he had increased seizure activity after the treatment.  Can anyone tell me the experiences they had while doing neurofeedback.  Is this to be expected?

Just need to keep the faith here.

Laurie

Our son is 16, has failed 6 meds and has myoclonic absnece seizures.  Mornings are really rough for him, hard for his brain to Kick in.  We started neurofeedback 2 months ago.  We go 2 x per week.  The Dr. had a eeg done and sent it out for a brain map.Based on the findings she has changed his treatment a bit.  I know it will take a while to see results.  His brain has been doing it's own thing for years and it will take time to correct.  But he has been really tired after each session.  Yesterday he had increased seizure activity after the treatment.  Can anyone tell me the experiences they had while doing neurofeedback.  Is this to be expected?

Just need to keep the faith here.

Laurie

Re: EEG Neurofeedback or LENS Neurofeedback

Submitted by crowjmc on Mon, 2011-05-16 - 23:12
I see that this was a couple of months ago but wanted to comment anyway....my son (14) has been doing LENS neurofeedback for a couple of months now; I find that he no longer seems to get tired after treatment unless his practitioner pushes a little harder on certain areas. He has shown a lot of progress but there are still a couple of areas that seem stubborn and resistant to treatment. One time after treating those particular areas he had a sort of mini-seizure in the car; we weren't even sure that's what it was, because it was just sort of a hiccup thing, but it wasn't normal, and after a lot of reflection we determined that it was seizure activity, just not nearly as severe as he had had in the past. Since then she (the practicioner) has just moved very slowly and cautiously with him. I always have him go home and rest and drink water after treatment, and he's been fine. I guess that my point is that your son's level of fatigue or his reaction may be related to what the treatment was that day, since it may vary. Please let me know how it's going at this point -- I need help keeping the faith too! Thanks -- Mary

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