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Diet, Drugs, sleep... What is known to increase/decrease seizure activity?

Thu, 04/23/2009 - 03:56

Hi there, I'm fairly new to this site, so you may have talked this issue to death already.  If so, please point me to the conversation.

I've been living with "episodes" for over 20 years that last about 5-10 seconds where I cannot process speech (written, spoken, sung).  I am aware of this and can continue to walk, chew gum, play drums, drive etc.  I have had 3 gran mal seizures during those 20+ years.  I'm currently on Carbitrol - 1200 mg/day.

Anyway, I've been trying to correlate an increase in episode activity with my diet, sleep cycles, etc. and cannot find any rhyme or reason for the periods of increase.  I can go months without any activity, then go several days where they happen 10 times per day.

I gave up Diet Coke for a year and it made no measurable difference.  I've almost thought I could correlate pizza with increased activity, but don't have enough data to back this up.  I once thought broccoli triggered it too, but have since rejected this.  During times of little sleep, I often do better than times where I get a lot of sleep.  Like I said, no rhyme or reason.  I've considered writing a detailed journal to be more scientific about this, but I'm way to busy for this...

I noticed on another thread that antihistimines can trigger seizure activity.  I took a Claritin the day before yesterday and yesterday was really bad.  Today I seem to be back to "normal" with no activity.  I hardly ever take any drugs other than the Carbitrol, so this is only a side note.

Have any of you found a correlation between diet/exercise/sleep/whatever and increased/decreased seizure activity?  I'd love to get some ideas for things to try.

Thanks,

Doug

 

 

Comments

re

Submitted by helperr on Sun, 2010-05-09 - 13:25
It has to do a lot with the diet and sleep (I don't know about the drugs but probably that too). I had similar problems and they stopped once I started the Cardio fitness program.

Re: Diet, Drugs, sleep...

Submitted by mcm on Fri, 2010-05-14 - 11:30
I've tried to correlate my partials to every variable I can imagine. Diet (I have an extensive diet log) and I can find no correlation. I tried going low carb even the modified Atkins diet for a while, no correlation. I'm a runner and log that as well. no correlation to whether I run or not. Sleep patterns don't seem to correlate. I to am in a scientific field, although not a statistician my job often requires the use of statistical tools and I can find no correlation to anything. I have basically given up on correlating my seizures to all reasonable variables. The seizures appear to be truly random (for me at least), and EXTREMELY frustrating. I find no other choice but to "give in" to drug therapy and just keep trying different ones at different doses until something clicks. This effort as we all know takes time, a lot of time. None have worked for me yet. The whole thing is very depressing but I try, try ,try not to let it get me down. Thanks for reading. Good luck everyone. 

Re: Diet, Drugs, sleep...

Submitted by DougInSanDiego on Sat, 2010-05-15 - 05:08

Hi mcm,

You are singing my song!  I too have given up looking for triggers for my partials.  My other post in this thread shows that I'm currently having good results with a Keppra/Carbitrol cocktail.  I'm hoping I will still have good results when I am weaned from Carbitrol completely.  I really don't want to ruin my liver with too much of anything.  I guess it is better (and safer) than having uncontrolled epilepsy.

Best wishes in finding the cocktail that works for you,

Doug

 

Hi mcm,

You are singing my song!  I too have given up looking for triggers for my partials.  My other post in this thread shows that I'm currently having good results with a Keppra/Carbitrol cocktail.  I'm hoping I will still have good results when I am weaned from Carbitrol completely.  I really don't want to ruin my liver with too much of anything.  I guess it is better (and safer) than having uncontrolled epilepsy.

Best wishes in finding the cocktail that works for you,

Doug

 

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