Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Wondering why I have seen nothing about Epilepsy brought to the front??

Mon, 05/02/2016 - 12:20
What will it take for the EFA to get pro teams to acknowledge epilepsy. We have all seen pro teams wearingpink and the refs usin pink flags. They back cancer and it shows up everywhere. A little color change and some discussion could bring attention to our cause. You do I need to talk to in order to get information about that getting Epilepsy brought out into th public?? We see one person after another talking about cancer. Where are th people talking about Epilepsy??

Comments

Well my neurologists are with

Submitted by just_joe on Mon, 2016-08-08 - 11:19
Well my neurologists are with the group in Dallas that do the testing for mew medications. If you know what to do with clinicaltrials.com ust enter epilepsy and the city. You will see about 115 tests in Dallas and there are some in Houston and several other cities in Texas. The different procedures may be in another area but true more research is being done with other diseases.people that are diagnosed need to research their own diagnosis because they seem to think the seizures that they had are the only seizures they can have. When in reality they can have more then 1 type of seizure...

It just occured to me: why

Submitted by 9liv3cat on Sat, 2017-01-14 - 00:53
It just occured to me: why not NASA? They helped with the epipgogo wristband seizure detector. Or CalTech University.

Caltech could do a Rose bowl

Submitted by 9liv3cat on Sat, 2017-03-25 - 22:03
Caltech could do a Rose bowl float.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.