Epilepsy

Fri, 08/24/2018 - 06:43
Calling out all doctors. Why myself and countless families are suffering due to your lack of caring I suppose I don’t know. What I’m getting at is when I sat down with a neurologist the first time he listened to five min of my story and was already sending out a script for epilepsy. I’m asking why, why are you telling me with no test results I’m an epileptic. This is why over 10% of people are misdiagnosed I’m being one of them. I left deflated just to find out a year later my seizures are legit and not related to epilepsy at all. I have non epileptic seizures and that doctor who knew everything in five min didn’t even tell me it could be something else. He made up his mind and that was that. No mention of six types of seizures and some are not related to misfires in the brain but a brain overload and your body reacts just like a epileptic seizure. Even the best doctors can’t tell the difference but they won’t talk about it. Well I’m talking and ten percent of more than one hundred forty thousand diagnosis a year that’s a lot of people neurologist are just leaving in the dust because it’s obvious doctors don’t care about anything but getting paid and too prideful to admit science has proven an old thing to be broken and offer a fix but nothing. Not one precessional through out this whole thing even mentioned non epileptic seizures it was made out that that’s it either epilepsy or a mystery. Well it’s crap and somebody needs to start caring. Seizures are real they are scary and can be fatal. Stop worrying about my damn insurance and maxing our your schedule and focus on your patient your paid good to do so and you took an oath by not informing me of all options that doctor broke that oath. Thanks for the comment section. The scholars talk the doctors don’t care and we’re here suffering. I’m extremely lost upset and sad at this broken system. This probably won’t even get posted because it’s true and in this case the truth is sad.

Comments

Doctors often seem to not

Submitted by birdman on Fri, 2018-08-24 - 21:02
Doctors often seem to not care or listen.  I've been trying to figure out MD behavior for many years which has lead me to read many books on why they think and behave as they do.  One of the first ones I read was, The Silent World of Doctor and Patient by Jay Katz.  Katz has a degree in law and argues for informed consent.  Then he writes why doctors behave as they do and may be reluctant to share all that they know.  Katz writes that one reason for doctors' lack of listening and their misjudgments is because of "uncertainties in medicine".  Medicine is full of uncertainties and science does not know all there is to know about medicine, illness, and especially epilepsy.  Katz explains that to overcome this weakness students in medicine are trained to be more confident and certain than they really are.  In one way this is good as most patients don't like a doctor who is uncertain; we expect doctors to know and be sure.  But the truth is that doctors practice medicine which carries many uncertainties.  I do appreciate a doctor who acknowledges that he or she does not know and is willing to put more effort into finding the answers and I'm sure you would have appreciated this also instead of one who makes mistakes and causes patients to suffer for their errors.A book I read more recently, How Doctors Think (Groopman, Jerome), is a good one for us patients to read.  He writes about the rather high rate of misdiagnosis that occurs by doctors and much is due to flaws in doctors' thinking.  But then Groopman gives suggestions on questions we as patients can ask to help doctors make sure doctors's thoughts don't get in the way of proper diagnosis.  When a doctor seems too quick to diagnose a condition as "epilepsy" we are encouraged to ask, "is there anything else this could be?"  Also Groopman encourages patients to not only discuss their medical condition but to express our feelings at visits like, "I sense we are not communicating well", or in your case you might express you might share that you don't feel doctor is making too quick of a diagnosis or doesn't care.  I hope your message on this site gets out to the doctors who need to understand how we feel about the way they treat us, but go ahead and express it to your doctors directly.

Well lets look at different

Submitted by just_joe on Sun, 2018-08-26 - 13:27
Well lets look at different things. All doctors ask questions to come up with different things that could be your issue.  If you are having seizures then the first ting they would do is treat the issue (the seizure). Medications are created to control seizures. Believe it or not but with most peoples tests they all look normal and the neurologists have done their job by diagnosing what they believe is correct. Research the number of people with PNES and do compare that number with people with epilepsy. You might see that there are many more people with epilepsy.As  for misdiagnoses yes those happen and even with the best training they will still happen.  Do or have you ever did something that you shouldn't which caused problems at work? That answer is YES. We all have. Now for your personal information. Within the last few years Epileptologists (neurologists that specialize in epilepsy) have been working with people from PNES so they can keep down misdiagnoses, It goes both ways. There are people that even have BOTH kinds of seizures. SO how do we treat those people? One type definitely needs medication to stop the seizures.  The other seizures medications do nothing for.Now if I go to the ER with a chest pain and they run their tests and the EKG comes back normal they will try and send me home. If I go home the possibility of having a heart attack is higher. You see I have an irregular heart beat. Meaning it may look normal right before the heart attack starts. I am to inform the doctors to call my PCP before ever releasing me.

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